LymeNet Flash: neuropathy question

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»	LymeNet Flash » Questions and Discussion » Medical Questions » neuropathy question

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Topic: neuropathy question

tiredmom21
Member
Member # 28479

posted

Hi.

To give a short background I had neuropathy for about 6 months prior to my dx of lyme through Igenex and then a clinical dx of bart by my LLMD. We believe I had been infected for at least 3 years prior to dx, but obviously could have been longer.

Current treatment is IV rocephin 4 days on 3 days off
Rifampin daily
Flagyl 3 times a day for 3 days a week

I am seeing improvement in a number of my symptoms such as energy is up, headaches are less, generally feel better. BUT...
the neuropathy in my hands and feet is getting worse.

I know there is really no way to know if this is a progression of disease or side effect of meds, but wanted to get some input from you all.

The other thing that is worse is a muscular/arthritic type of pain in just my right hand (I am right handed) but I cannot use my right hand much for the second half of the day, which is new...and stinks with a toddler and trying to work.

I know Flagyl can cause neuropathy but my LLMD said he hasn't seen in when used in a pulsing fashion like we are. Can Rifampin cause it as well? He is suggesting I go to Levaquin for Bart b/c he feels this means the bart is not being treated adequately, but I was nervous to do that originally b/c of chronic achilles tendonitis that I have had for years.

Thanks in advance for any insight someone may have.

Posts: 47 | From Texas | Registered: Oct 2010 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

"He is suggesting I go to Levaquin for Bart b/c he feels this means the bart is not being treated adequately, but I was nervous to do that originally b/c of chronic achilles tendonitis that I have had for years."
===========

Call me chicken but I wouldn't "go there." YIKES!

Yes, the flagyl can cause permanent neuropathy... so be cautious. You WOULD think that taking it only 3 days a week you would be safe.

Up for help!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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