posted
so after 14 months of getting nowhere with my doctor I finally broke down and did the Igenex test.
IGM- 41+, 45+, 66+ IGG- 31IND, 39IND, 41+, 58+
MRI also showed small focal abnormalities in the white matter of the brain.
never had a visible tick bite but was an avid outdoorsman before this started. last time I was in the woods I took 12 ticks off my clothes.
Posts: 44 | From Pa | Registered: Feb 2011
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Dexter, Hi, have you been to LymeNet before?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Looks like lyme to me. I also had two small spots on my MRI and an abnormal spect.
Fast forward too today after 8 months of treatment, my brain MRI is normal. Spect is greatly improved. Still have a bit more to go but feel a bunch better.
Get an LLMD asap!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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( from around 1999 ).. "In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93."
From around 2005:
"The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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quote:Originally posted by Dexter: Steve- my symptoms are vertigo without the spinning, buzzing and weakness in the legs, sore neck, ringing in the ears,
general weakness, fatigue, floaties in vision, heart skipping a beat, and hands shaking.
also have had what might be anxiety attacks without the rapid heartbeat.
everything seems to intensify every 3 to 4 weeks.
when this first hit me 14 months ago I dropped 18 pounds.
I've been to 2 cardiologists, 3 neurologists, numerous blood tests and a colonoscopy.
the best they could come up with was silent migraines.
one specialist told me Lyme is like religion. he will believe it when he sees it.
I haven't been in the woods since Oct 2009. haven't had the energy.
Lyme disease. Your symptoms, history, and your test results, no doubt about it.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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posted
thanks for all the replies. glad to know I seem to be on the right track.
hopefully the LLMD sees it the same way and I can finally start treating something after 14 months.
now I need to convince my insurance company that I probably have Lyme even though the CDC says I don't.
Posts: 44 | From Pa | Registered: Feb 2011
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Dexter...your symptoms and story could have been a clone for mine. Biggest symptoms were dizziness, floaters, tinnitus, ear fullness, fatigue, anxiety, MRI with spots, lost 20 pounds, fast pulse, etc.
Good news is, after 9 months of treatment, most of these are completely gone. I'm 95% today.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Dex, now you know the enemy, go get 'em. You are probably in for a real fight the next several months.
Patience is a virtue. One that you will need to learn so you can fight them.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Dex, I'm sure the LLMD will be treating you for at least Lyme to start with.
Your not crazy, your just one of us!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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