posted
I was diagnosed with chronic lyme a little over 2 years ago, and have completed 1.5 years of triple antibiotics treatment before i had to stop due to weight loss and gut problems.
Recently, i decided to see a GI specialist. Since my symptoms were severe, I completed a full panel of GI tests, including gastric emptying, upper and lower GI tests, and a CT scan.
My gastric emptying test came back abnormal-very slow digestion. So, diagnosed with Gastroparesis, which has many causes-but is mainly caused by damage to the vagus nerve.
Now, researching vagus nerve damage, i see that even infections and trauma can damage it, and can cause a host of serious problems, that are disabling, but may potentially be treated.
If i am repeating a past thread, i apologize. If anyone is where i am at, or has been here already, please give me your take on vagus nerve damage and treatments you have found successful if any. Thanks!
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Thanks for the link. I'm on motilin (brand name is domperidone) which i have to order script from canadian pharmacy. This is supposed to help my stomach muscles contract, thus digest better.
Having a lot of symptoms of P.O.T.S. too although i am awaiting dx for that.
Got pretty dizzy and had to do deep breathing just now to brush all the snow we're getting off my car's windshield. Oh the exhaustion of it all!
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
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posted
iv rochephin helped me the best with my upper and lower Gastroparesis including slow stomach emptying
-------------------- LSG Scott Posts: 513 | From Boston, Cape Cod, Mass | Registered: Aug 2009
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My 15 year old son is free from gastroparesis 5 months into Lyme treatment. It was one of the first things to clear up. I often wonder if it was babesia. He has POTS, too which often go together. My son took mestinon for gastroparesis which is used in myasthenia gravis. It did the trick when nothing else would work. I'm sorry you are struggling with this.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I was off all oral abx and treatment when gastroparesis was dx'd. My weight was dropping dangerously and i was getting weaker. I do have some Mepron left for Babs treatment. I will have to ask my LLMD next apptment if i should begin tx again (i went to her in limbo)...still there
P.O.T.S. and Lyme at age 15...now it is I who's amazed that both were successfully diagnosed and treated. I am so happy for your son. Most docs in this state would just call it puberty. Stupid ducks!
Posts: 123 | From Minneapolis, MN | Registered: Jul 2009
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
All of what you posted is Bartonella for me.
All of it!
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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