I posted back in December about severe body wide Nerve pain that I wasn't quite sure was lyme. Well it appears it was. I was diagnosed in 06 with lyme after severe neuro symptoms, tremors, myoclonus, etc.,
For two years I treated. One full year on orals and bicillin shots. The second full year on Rocephin IV. I had two and 1/2 full years of remission from the lyme.
I never had the severe nerve pain so when i got sick beginning in October with stabbing pain, I wasn't thinking lyme. As it progressed it was body wide by December. My LLMD started me on a heavy regimen of biaxin, flagyl, ceftin. I've been on them two full months and the nerve pain is completely resolved.
I believe she wants me to continue for two full months. My appt with her is friday so we'll see. To satify my primary Dr. I saw a neurologist two weeks ago at UCSF hospital in San Francisoc. He specializes in nerve/neuromuscular pain.
When my primary made the appt in October it took five months to see this guy. Anyway by the time I saw him I told him the body wide nerve pain was gone.
He told me to continue taking the antibiotics and follow up with my Lyme Dr. He also said if he got 10 infectious disease Dr's in a room only one would buy into the chronic lyme.
Having been down this road for five years now, I already know that. The good news is he said it's probably the lyme since the pain is gone.
I have a question though, I am so sick on this combo (GI symptoms, feeling of being poisioned) would you continue for two more months??
Flagyl alone is so debilatating, but in combo with the other two I'm feeling so crummy.
Barb
Posts: 281 | From san francisco | Registered: Jun 2006
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I would start seeking alternative therapies - even if you tough'ed out the ext 2 months there's a great chance you aren't finished.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
How is Flagyl debilatating? I took it for three months and never felt different. Just curious
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
If you have lyme then flagyl lets you know it. It is a horrible drug even though it is a cyst buster.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
In general Tindamax is easier to handle than Flagyl and does the same thing. I'd try tindamax before I tried Flagyl.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Flagyl always made me feel like I was being poisioned. It is a potent drug. If you do have lyme it does let you know it. Many Dr.'s do the flagyl challenge when testing their patients. When I did the flagyl challenge I got severely ill. It was clear even before my CDC positive came back.
The good news about flagyl is it works great on lyme. I was never able to tolerate more than two weeks at a time. The fact that I've got 70 days straight is a milestone for me.
I also have taken tindamax in the past. That too worked. I believe I was on it for the whole time I did Rocephin IV (one year).
Thank you for the replies. In reading the book Cure UnKnown, I think for me it's a lifelong battle. I just have to work to get it quiet once again.
Posts: 281 | From san francisco | Registered: Jun 2006
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