LymeNet Flash: Chronic Lyme

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Chronic Lyme

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Author

Topic: Chronic Lyme

sandim
LymeNet Contributor
Member # 30251

posted

I am looking for some advice. I have been sick for about 5 years. I was diagnosed with Lyme and possibly Mycoplasma in July and started treatment in September. After I started treatment I felt much worse. Every month I track my symptoms and it seems that every 4 weeks I get a lot worse as wells as right before my period. My really bad days are becoming less frequent every month. However, I have knee pain that doesn't seem to go away (almost feels like it is getting worse) and I am still very symptomatic. Should all of these things been gone away by now? My knees seem to be very painful still and aren't really letting up. I am very worried that my treatment is working.
Thanks for you help!

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

lou4656
Frequent Contributor (1K+ posts)
Member # 10300

posted

Please see an LLMD. Start a new thread and request names of LLMDs for PA.

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LouLou

Posts: 1276 | From maryland | Registered: Oct 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Moving to Medical Questions

YES, PLEASE GO BACK TO SEEKING A DOCTOR AND REQUEST AN LLMD!!

Link to Seeking a Doctor:
http://flash.lymenet.org/ubb/ultimatebb.php/forum/2

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--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

sbh93
LymeNet Contributor
Member # 30429

posted

I'm sorry you feel so bad! I'm not a doc, so definitely find yourself a good one as suggested.

I just wanted to share that I read in "Coping with Lyme Disease" that it's very common for women to suffer more with lyme symptoms around their periods. Ask your doc if there's anything you can do to help with that.

Feel better [Smile]

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------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011 | IP: Logged |

sandim
LymeNet Contributor
Member # 30251

posted

Thanks for your replies. I am in the process of looking for an LLMD.

How long does it typically take for people to feel better with Chronic Lyme?

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

erikjh1972
LymeNet Contributor
Member # 20964

posted

honestly everyones different. it varies and depends how long you have had it also.

i had it a little over a year before recieving proper treatment, and i've been taking meds almost a year and a half now.

--------------------
3 months Doxy
8 months of Tetra
7 months of Biaxin/Plaq.
4 months Doxy/Biaxin/Plaq.
5 months Biaxin/Plaq.
Back on Doxy/Biax/Plaq
On the road to recovery.
Trying to make people Lyme Aware.......

Posts: 289 | From R.I. | Registered: Jun 2009 | IP: Logged |

sandim
LymeNet Contributor
Member # 30251

posted

Thanks for your input! Did you have a c4a test done. Mine came back and it went up again. It went from 3,500 to 20,500, to 22,100. My doctor says it's from the herxing. I really don't know if I should worry about this. Any advice I would greatly appreciate.

Thanks

Posts: 144 | From Pennsylvania | Registered: Jan 2011 | IP: Logged |

Caniggia
Member
Member # 30479

posted

I just got test results from Germany.

Positive cell activity for Borrelia, Chlamydia and Ehrlichia.

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My blog about my condition - http://borreliawenttofar.wordpress.com - Diagnosed with cellular activity for Borrelia, Ehrlichia, Chlamydia Pneu. Also have the herpes simplex virus.

Posts: 52 | From Sweden | Registered: Feb 2011 | IP: Logged |

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