susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I was re-tested this week - non LLD - for LD and Bart. IF I test positive to either standard - Igenex's or CDC's - does Igenex report to CDC or Health Dept.? TIA.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
Hi, I was wondering the same question.. My first 2 tests from Quest came back negative, and my 3rd from Igenex came back postive.. Months of not doing anything due to false negatives. What a wast of time!!! Hope you feel better!
-------------------- Cathy Posts: 9 | From Bradenton, Florida | Registered: Jan 2011
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I doubt the CDC cares about an 'Igenex postive." They issue MANY more than other labs based on comments here. I'm not sure they'd consider them credible.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I wasn't called by the health department about my Igenex CDC-positive Lyme test, however, they did call me about a Labcorp positive babesiosis test.
Posts: 45 | From New Jersey | Registered: Sep 2008
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
The doctor who ordered my daughter's Igenex test was contacted by the CDC.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
I was told that they call the doctor who prescribed the test when it is positive. This may be a good thing since they will see how many of us have lyme and further their research on it.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I was contacted by my local health dept. So, yes, in my case it was reported but I'm not sure if Igenex reported it or if my LLMD did.
Posts: 1104 | From N.California | Registered: Jan 2008
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Nobody in Canada gets reported to any monitoring agency here when they have a positive Igenex test.
This is Health Canada's stand on Labs in the US:
"With respect to use of diagnostic tests from other labs, some diagnostic laboratories in the USA perform blood tests for a fee; however, some public health institutions have warned that some of these labs may be using methods or interpretations of test outcomes that have not been properly validated,see this link for more information http://www.cdc.gov/mmwr/preview/mmwrhtml/mm5405a6.htm). "
"We certainly do not want to see Canadians suffer especially if they have a treatable disease like Lyme disease but it is also our duty to try and ensure that people aren't treated for infections they may not have."
So it will be highly unlikely that they will be accepting those results anytime soon. That is why Lyme disease here is so grossly unreported.
posted
I did get a call from the CDC as well as my Dr. due to pos CDC Igenex.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I just called Igenex. Was told that they report any positive tests to CDC and state Health Dept. To include positives acc to Igenex or CDC standards. Also co-infections.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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