posted
I have constant muscle twitching all over my whole body. I read Dr B's treatment guidelines and it stated that muscle twitching occurred in the extremities.
I have muscle twitching everywhere. Hands, face, feet, legs, arms, neck and stomach. My LLMD says you can have muscle twitches anywhere from Lyme. But I am getting increasing concerned about the twitches.
Currently I am on A-BART and I'm afraid it's not enough to really tackle this infection.
Suggestions? Thoughts?
Posts: 132 | From Somewhere | Registered: Jan 2011
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posted
You're not alone, I get muscle twiches/spasms everywhere. They wake me up at night. Everything feels so tense and pulls really tight.
Sorry I don't have any suggestions at this point, I'm just starting treatment for Bart. Hoping that Levaquin helps because this has been quite painful (as I'm sure you know)!
Good luck to you.
Posts: 63 | From Millersville, PA | Registered: Jul 2010
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Before I got treated, I would have them everywhere. Now, they were not that frequent, just a little bit here, a little bit there. But, as far as location, though, definitely not just extremities.
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
Magnesium may help with this! It didn't really for me...but it does for many others.
~Tri
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Anyone can get muscle twitches, so I tend to think it is most likely a magnesium or some other deficiency. I still have them a good bit, even though I am much better in the lyme department.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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chiquita incognita
Unregistered
posted
Magnesium deficiency makes sense. Consider also vitamin B 12 as nerve anti-inflammatory, so long as no methylization issues exist. I have read about MS patients responding very well to vitamin B12 injections in several alternative medicine reference books that I have.
My LLMD said that muscle twitches can be related to bartonella.
In my case, this cleared out (plus curling up of my fingers asleep in the palm of my hand, this is no longer happening though they do still fall asleep) using Bar 1 by Healthy Directions.
It took about three months for symptoms to improve and then I was on them a total of 6 months.
Starting myself on that product again because I found it to be very effective at least for me, with very minimal herxing and most of the time, with none at all.
That's at least what my experience was. We all respond to different things.
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IckyTicky
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posted
I don't know what to associate my muscle twitches with... Lyme, Bart, Mycoplasma... I tested neg. for Bart but pos for the other two. But quite sure I DO have Bart.
I have bodywide muscle twitches as well. Small muscles and large muscles. I get it in my face, my stomach, my buttocks, thighs, arms, legs...even my SCALP twitches.
This actually went almost completely away with Zithromax. But I have not been on abx for almost 6 months now and the twitches are back.
Also, when I decreased my klonopin(clonazepam) dose, the twitches came back with a vengence. A known side effect of clonazepam withdrawal.
But I had the twitches long before starting that med.
I think if I were to go back on Zith the twitches would get better again. I tried magnesium but it did nothing for my twitching.
I understand your concern with the twitches... but know that it is very common with Lyme. I've had muscle twitches for over 3 years now and I have read that they are usually the last symptom to resolve.
My three children and husband also have muscle twitches, although my husband is the only one whos twitches are the same intensity as mine so far.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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posted
I'm sorry you are all experiencing the muscle twitches as well. But thank you all for your input. I'm not taking magnesium so maybe l'll look into that. But I am taking sublingual B12. My B12 level was actually normal above 600.
My LLMD also thinks the twitches are Bartonella related.
I guess I just have to be patient. I'm a little too anxious to move on with my life, continue running and have more children.
Posts: 132 | From Somewhere | Registered: Jan 2011
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Twitches are a common lyme feature too. It is also good to rule out thyroid involvement, which can also contribute to the muscle twitching...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Muscle twitching can be lyme or bartonella. I had them flare up every four weeks so that was probably lyme. I have not had them in a long time, except a couple minor ones very infrequently.
I am not sure what stopped them as I was treating lyme and then bartonella, not really understanding which symptom was which infection as they overlap. But the twitching went away completely when I started bartonella treatment with Bactrim DS and zithro/biaxin.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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