beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
i was thinking of going to Dr J for a 2nd opinion. I see his pts only take meds MWF, 3 out of 4 weeks.
How many of you pulse, and who takes their meds non-stop? I think high dose pulsing is becoming more popular
Posts: 1276 | From maryland | Registered: Jan 2009
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Great question
I have done both. Early on I did full time and then went to pulse too soon and relapsed.
After about...6 years of off and on tx including IV with the paast year of full time low dose I am now on a pulse schedule and doing great.
4 days on and 3 days off. My body seems to be responding very well to pusling and my immune system seems to be waking up and doing some work on its own - which is one of the goals of pusling.
Another benefit for me has been a decrease in yeast issues doing pulse tx.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
Nonstop eleven months straight for me...both IV and orals...but no real improvement...
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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posted
Non-stop for me, but that is mostly for babesia, and that shouldn't be pulsed (per Dr. B's guidelines).
Posts: 964 | From san diego | Registered: Oct 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
After 2 1/2 years of continuous abx, I am now taking one day off every week. On that day I only take probiotics, LDN, some supplements. I will probably be increasing this to two days a week.
Furthermore, on my ON days, I pulse my antibiotics thusly: zith and penicilin on MTW, and zith, omnicef and fluconazole on TFS.
I am hoping to eventually get to taking abx three days/wk, with four days off.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
Been pulsing for the last two weeks with what appears to be continued improvement.....although very slow.
Posts: 246 | From south florida | Registered: Mar 2010
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posted
Haven't started IV, but the plan is that when I do it will be two days a week... so I am also interested in more replies to this question and especially anyone on fewer days.
It seems like most who pulse do 3 or 4 days/week and I'm wondering if 2 days/week will have any benefit at all.
Also, when you pulse, do those days have to be in a row?
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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posted
up... who else pulses?
Posts: 453 | From TX | Registered: Aug 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I tried it last June on my own when I was feeling better. I was on Bactrim DS and zithro. I was taking three days off, four days on.
I plunged in one month and could not regain momentum. I went to an LLMD who put me on Mepron/zithro and have been on it continuously since late November.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
^
Posts: 1276 | From maryland | Registered: Jan 2009
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