fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Well not sure what to make of this.
Blood test results are from Jan and then again in March
CD-57 from 26 to 43 Iron from 12 to 29 Cortisol is high at 20.5
I lost one band on the western blot (41) Which now leaves me CDC Negative for Lyme. I still have some bad days with brain fog, head pressure and fatigue. My Dr. is pleased with my progress and is keeping me on the same doses and meds for another two months and checking me for Rocky Mt. Sp. Fever.
Is it true that you lose bands as you treat?
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
anybody?
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
posted
im not sure, but i was positive for 4 bands on western blot, and after treatment showed only 1... but when i relapsed all 4 are back now. i guess maybe they regrow? Im not sure, but its tricky. i dont think you would lose antibodies, but the tests that show specific proteins i would imagine should dissappear
-------------------- A tiny bug no bigger than a pimple on your butt can change your life. Posts: 101 | From Southern NJ | Registered: Oct 2009
| IP: Logged |
posted
I wouldn't go by any testing to tell me if I'm well.
So just keep going till you feel great!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I plan to keep going, I am feeling closer to myself more and more. I still have symptoms though.
Symptoms = Treatment. Gonna keep hittin it hard.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Bands often change even without treatment because of antigenic variability, immune system changes etc.. Tests don't help much in determining whether or not one is in remission. The CD57 is helpful but not absolute and supposedly it should be much higher than yours before stopping treatment.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
My daughter has been tested via Igenex 3 times so far. While she has had 4+ bands its never been at the same time or category (IgG & IgM).
As an example: On her second test she had 34+ smf 41 IND on the IgM and 30+ and 41++ with 34 & 39 IND on the IgG. Not positive by IGeneX or CDC.
On her third test the IgM were all -, the IgG was 41++ and 34 & 39 IND.
I go by the philosphy you only need ONE band to show a reaction to confirm the Lyme. Then if you have Lyme you have to consider the other TB co infections.
Clinical diangosis, not serological.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
| IP: Logged |
posted
Just a thought. My daughter had no classic symptom of Babesia except for the three that you mentioned. Have you treated for this co-infection yet?
You could add Malarone to the zith you are taking. Thats what she is on.
Doing much better.
Deb g
Posts: 499 | From Malta, NY | Registered: Dec 2008
| IP: Logged |
fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
My Dr. says most people who have contracted Lyme will always end up with one band at the end of treatment. Is the trick to treat until all bands are gone? As long as symptom free for two months ???
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic