posted
Who has done IVIG therapy? Any experiences appreciated as I will most likely be starting it soon.
Posts: 306 | From NY | Registered: Sep 2010
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
What does this do?
Posts: 1142 | From South | Registered: Dec 2010
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posted
I couldn't get insurance to pay for it. They've paid for any and everything I've ever asked for but not this.
My LLMD sent me to a norm Neuro doc who uses it. He said he's had some cases come back to completely one hunder percent healthy from it, but he said some just did nothing. He wasn't sure why it helped some and not others.
Sorry I can't give you a personal story. But he did say it's gotten people better.
Posts: 105 | From east | Registered: Nov 2008
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posted
Anyone else any experience? Curious about how different insurances feel about it and the challenge of getting it approved
Posts: 306 | From NY | Registered: Sep 2010
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susank
Frequent Contributor (1K+ posts)
Member # 22150
posted
I am re-starting IViG. 10g GammaGard to start out. The first time I had the infusion was 30g of brand that has high IGA content. Had trouble with that. Cannot remember that name. I was approved for IVIG because it was discovered I have hypogammaglobulinemia perhaps CVID. Have you had your IGG and subclasses checked.? If they are low you would stand a better chance of ins. approval. The jury is out on me in regards to what IVIG is doing. Along with all the other LD symptoms I have dry eyes, dry mouth and very sensitive to light/glare in regards to my eyes. I think the IVIG makes it worse but am told it could not possibly do that. FWIW.
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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posted
I was on weekly IVIG infusions for a year, as an MS patient. Cost the insurance co $75k for a year, and did nothing for me.
Posts: 252 | From NJ USA | Registered: Mar 2004
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