posted
You know I am thinking about homeopathy. I did do it while in Mexico and although it is a slow process and can make you worse before it makes you better, it does work.One problem I foresee, is that many doctors don't know anything about Lyme, let alone, how to treat it. I don't know if being in Tx. where Lyme apparently doesn't exist and doctors are run out of the state,would even touch it.
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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posted
I wish you much success and hope you will keep us updated. I've wanted to get my child off abx since the day we stared, but we're following the "expert's" advice and only see her getting worse--
Hoping the LLND we see in a couple of months will help us get off abx--of course, then I'll worry that that's the right decision too--
It's definitely a scary decision.
Posts: 648 | From northeast | Registered: Feb 2009
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posted
Lyme sucks...the life out of all of us! Has anyone tried IV Chelation and Nutrient (or nutritional) therapy?
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
J03 - This thread is discouraging. I have the same symptoms, basically my brain doesn't work.
If I had aches and pains I could see trying a different route but how can you function without your brain?
If I don't get my brain back, I'll lose my job as well as many other setbacks.
Are you able to work still?
Please post again when you have been off of meds for a while.
Posts: 2232 | From USA | Registered: Aug 2009
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I went back to work after treating for 4 months, I am improving. It is not easy but I push through. I am keeping my eye on the prize. My brain is coming back, I have been treating 6 months.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
I'm a teacher and it's very hard to stay focused,remember so many details and do a good job. The doc says it's too much stress for me but that's all I know how to do. i feel stupid, my fourth graders catch me on a lot of mistakes and I really want to get out of teaching but I don't think I can handle anything else. I'm afraid if i do something different, adults will catch my stupidity. I had an IQ test a while back-it was an 84-that's a fourth graders IQ-how depressing is that .I don't know if it was accurate and I know deep-down I'm not stupid, but I screw up big time and i too, have been afraid I'll lose my job.I wish I could get disability but I know it's very hard and i can't live on that amount each month.
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I hear you, I make mistakes too and it does suck when people without my background and experience are catching me in them. I have to work, I have no choice so I just pray my way through it. Disability ? I wish, but that would be too humane in this country for some reason.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
Too funny about the humanity-doesn't it just suck that our lives are in doctors and insurance companies hands? My Lyme has frozen me-I feel I can't go any further-get another degree-even get another job, not just because I feel stupid but because oftentimes, I am. It's not just the regulars: leaving the oven or, not paying bills-it's the difficulty of getting through the day. I most especially enjoy when people say, "Don't you remember...?"
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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posted
I don't mean to pull anyone down with my case-I've heard how discouraging this is. It saddens me to see how many people here have gone through the same-some plugging through and succeeding and others, having to change course. Too bad this disease is not a "once size fits all"-too bad it seems that no one with chronic Lyme is ever cured. So we go into remission, maybe for years, and it comes back with a vengeance-THAT's disheartening. When i lost my first doctor, had no choice but to just get by, I did OK-for a while. Then I left the stove on, the keys in the front door at night, and forgot how to get to work-living only 1 minute away-and had to look no choice but to look for someone else.I LOVE my doctor-he works with me and is just as discouraged and baffled as I am-but when the expert says it's as good as it's ever get, you get a little worried. He said he's had 493 patients who are either cured or in remission-am I the ONLY one? My luck isn't good, if something can happen to someone, it's gonna be me-but I find that incredible to believe. I'm taking note of everyone's suggestions and really appreciate your thoughts and experiences-that to me, is the best medicine!
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Hi Jo3, (you wrote this)> I don't mean to pull anyone down with my case-I've heard how discouraging this is.
Don't feel this way, you keep posting, don't stop asking questions.
You're not along, including myself. I didn�t see any negative feedback in this post, even if there was; that�s okay.
We�ll never all agree on these subjects. I think the person that said this is (discouraging) � was just making a comment � it wasn�t directed at you personally!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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posted
I know of course, that no one is being offensive nor did I take it that way. Usually, i am an optimistic person and we all need to be hopeful here. When others have wanted to throw in the towel, I've tried to encourage them also. I don't want others to feel depressed by what I write but i need the advice at this point from experienced Lymies!
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Don't worry about what other people think, we ALL need to communicate - WE ALL need each others help!!!
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Jo3, Thank you for your post. I totally agree you have tried and there comes a time to not give up but accept reality.. I so agree about the abx. My LLMD has been up front and honest with me. Built the Immune system, treat the inflammation and hope for the best.. Some respond to treatment others do not. God Bless,
Posts: 1058 | From VA | Registered: Oct 2010
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I hear you after only 4 months and two neg igenex tests as well as many negative tests on the outside and a negative cd57.....
I am done too. ALtough many mris have found other serious issues that could be the cause of my constant vertigo...seeing an ortho today and gonna start PT for my neck and back..I have hernaited discs in neck and buldging, arthritic and a tear in most of my lumbar discs as well aa degenerative arthritis in both knees..now wonder I am in pain!!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
The classical homeopaths would, generally, tend to not care if you have lyme or not. They are looking for an underlying constitution and treating it. They would not be treating lyme disease, just the person, which could in theory help you deal with and fight the lyme disease better.
Posts: 1927 | From se usa | Registered: Mar 2010
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Very true "MichaelTampa"
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
When I had 3 yrs of every abx and combo and a great LLMD and he wasn't sure where to turn next with me......I decided abx hadn't worked in fact I'm even more ill with it.
I would suggest you put your energy into new ideas. I bought a rife machine in '04. I'm not claiming a cure because I've not experienced that myself.
I keep getting tick bite several times in the last years? So my picture is blurred by who knows what.
But rife has taken the "I'm dying a slow miserable death here". Rife isn't easy road either.
Herxes are hard for months. One must combine any number of other detox protocols with it.
There are so many options and roads you can travel just by reading and doing some research on this site alone.
Go fight the good fight!!!!!!!!!!!!
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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posted
All these meds are now messing up my stomach-I'm on Biaxcin and Ceflin-or something like that along with Flagyl and Claforan. I don't know if I'm gonna last the 3 months-I spoke to someone yesterday who mentioned that my progesterone could be low and that's why my thyroid isn't getting better-I'm on synthroid and started at 60 and now have climbed to 150.He said to have my hormonal levels checked-even though they were checked about a year ago. He's convinced that if I get my levels under control, my thryroid will improve, i'll feel better and the Lyme may get under control. Sounds logical. He mentioned some other illness that I can't remember _darn-something he found out about at the mayo Clinic- he is a Dr. of Natural Medicine-knowledgeable, but cocky and arrogant.
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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