tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
My LLPA jsut perscribed me Plaquenil. I have been doing a lot of reading on it.
What were your experiences?
Did you suffer any sideeffects? Weight loss/Weight gain? Loss of Hair?? Anxiety??
Your input would be greatly apperciated!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I've been on Plaquenil for many months. It's the one drug that has produced no side effects.
I do sort of remember in the very beginning it giving me some more energy until my body got used to it.
It can accumulate in your eyes though. They recommend you get a good eye exam as a base line, then repeating every 6 months. I've had no problems at all.
My young son takes it as well without issue.
Good luck,
"I'm not a doctor, I just play one on google"
Posts: 699 | From confusion | Registered: Jan 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
How many mgs were you on?? That makes me nervous about my eyes!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
You know I really forget, but I take one pill in the morning and one in the evening.
I was freaked out by the eye thing in the beginning too, but I found other things to freak me out more as time went on. :-)
From what I understand eye issues can occur but are extremely rare. It's important to get an eye exam every 6 months.
Plaquenil is a drug that Lupus patients are often on for life...
Posts: 699 | From confusion | Registered: Jan 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
any weight gain...i dont need anymore of that
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
No, no weight gain. For me it's been the most benign drug I've been on.
Posts: 699 | From confusion | Registered: Jan 2011
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I did. Does nothing for me.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
I recently tried it but developed myalgia on it with shooting nerve pains...I think, though, my body may be struggling with depletion of CoQ10 and other mitochondrial support issues.....i think the plaquenil aggravated this....
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
I was on it, with Biaxin for 8 months, 200 mg twice a day. The combo helped with joint pain, headaches, and body vibrations. I had no side effects.
Posts: 319 | From Mass | Registered: Feb 2010
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posted
I was on it for 4 months with clarithromycin. No side effects and I had lots of improvement.
that phase of abx(along with rest of protocols) really bumped me out of the worst and restored my sense of future. Part brain recovery and part hope.
The LLND switched abx's a month ago to hit Bart more because I plateaued in a much better place on plaquenil and clarith in combo.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
All these pills can be overwelming sometimes!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I take it everyday for over 3 months with my abx haven't noticed anything,
Posts: 6 | From Holland | Registered: Mar 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I was on plaquenil for many, many months with no side effects.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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