tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I am so scared to take this drug....ah......
I really dont want to take it!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I understand your anxiety about it. I had it at first too.
I have now been on it for about 8 months.
No issues with it so far.
Doc said eye issues although happen are rare. I had my eyes checked 2 times while on it and they were fine.
Good luck!
Posts: 186 | From colorado | Registered: Jul 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Did you have any side effects?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
eye issues are very rare according to my eye doctor. dont worry
Posts: 3905 | From USA | Registered: May 2007
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I am just worried about all the allergic reactions I have red about...such as hives and blisters....
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I already have blurry vision due to lyme and co's...my anxiety is through the rough about this drug
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I've been on plaquenil for supposed lupus for 10 years. No problems, my eyes are fine and I get them checked every 6 months. I did have a rash from the generic brand so switched to name brand and have been fine. Of course I pay more for the copay. I think most replies have been positive. It is a helpful med.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I'm on Plaquenil too. No side effects either. Feeling better from being on it actually.
I have blurred vision when I get low on B12. Have your B12 level ck'd for the blurred vision if you haven't already.
Eye problems with plaquenil are rare from what I've heard.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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Did not have any herx reaction on it so I thought that it was not working for me. Then I stopped it for few months and my joints flared up big time. I went back on Plaquenil and since then joints are fine again.
No side effects.
For past 10 days I feel the same way about Flagyl, I fill prescription but still looking at the bottle afraid to start. Today maybe.
Good luck
Posts: 191 | From va | Registered: Sep 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I took plaquenil for many months with no problems.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Thank you for all your responses!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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posted
I got on it about a week ago...only thing I have notice is some days I get really tired...no sure if it is a sign that is working or not
Posts: 324 | From Philly | Registered: Jun 2010
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Been on plaq for 10 weeks- decent tolerance overall except for:
i posted a question 2 days ago and don't want to hijack your thread, BUT anybody experience what they would define as a burning sensation of the eyes????????????????? Could be from a myriad of other things, dunno?
Good luck with your treatment tricia386!!
Thanks!!
-------------------- Change is inevitable Posts: 77 | From France | Registered: Jan 2011
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