posted
As one of the many side issues having Lyme (18 years and counting) is that I contracted "beta step". It took a Lyme specialist to diagnose it. Before then I was treated for plain strep with Ceftin, Zithromax and other oral antibiotics. After finally being cured of it I have it again due to letting Wilson Syndrome reappear, drop my body temp and cause metabolism to virtually stop. I am taking T3 again and temp is slowly rising. I am seeing my PCP today and will try to get him to prescribe what was done to cure beta strep the first time. Regular Lyme doctor is booked out for months plus any doctor can prescribe this. I just need to know what others have been treated with for beta strep to see if it agrees with my memory. 1. I was self-injecting B12 3 times a week. This is a certain - still have bottle. 2 I was taking a rotation of oral antibiotics with Zithromax and Ceftin being two of them. Can't remember third. If you've had beta strep what orals were you prescribed? Doxycycline perhaps? 3. I had one injection at doctor's office per week for 12 weeks. I wrote down penicillin but I seem to remember "Biaxin". I'd also prefer my PCP repeat this series of shots. If you've had beta strep and recieved weekly injections - injection of what and how much? Thank you for your time. Been off for long time. Hope all on Lymenet experiencing improving helath. Everyone was so helpful to me in putting Lyme into remission. I'm still only at maybe 80% of normal health but better than "near death" (felt that way) years ago.
Posts: 133 | From Shawnee, KS | Registered: Sep 2007
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joalo
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Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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tick battler
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We think my daughter has a chronic strep infection. She has two kinds of strep we have found: beta hemolytic strep and strep pnemoniae. I am not sure what beta strep is, but I would assume it's the same as the beta hemolytic, which I think is the common one found with strep throat.
We are trying some homeopathics to treat it right now. I will let you know if they work. I understand it may take months to get rid of it.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
Thank you for replying. Lyme so weakens the immune system that other illnesses begin and are very difficult to conquer. I am not a doctor so just take this as words from someone who has battled Lyme for 18 years. I did electronics research for a living before retiring so I know the protocols of true research, tests, etc. So this may be of help to your daughter.
Besides Lymes (when I finally found a doctor who knew how to test/treat Lyme) I also had babesisa, bartonella, Tb, Wilson's Syndrome and a few other things plus "beta strep".
You first need to determine if your daughter has Wilson's Syndrome. www.wilsonssyndrome.com. This is VERY critical but few Lyme doctors know it and almost know doctors who should (ie thyroid doctors) know it. But it is real while almost no one tests for it. You can test yourself. Check body temp for a week an hour before lunch and dinner (not breakfast). Average temp of most people is 98.4 to 98.8. I was 91 degrees when I checked a month ago. Years ago, thyroid doctors did standard thyroid tests and found my thryoid was "normal" which means producing enough "T4". BUT a few thyroid doctors know the body does not use T4. It changes T4 into T3 which is what is needed. If the immune system is weak for a long time it "forgets" how to make T3. The body temp drops and below 97 degrees the body's metabolism almost stops. Good metabolism is needed for food nutrients to get into the system and for meds as well. Below 97, all meds and foods do almost nothing. They go thru the system doing little to no good.
Fortunately, WS is easy to overcome. Take synthetic T3 which only "compounding" pharmacists can supply. Armour thyroid also works but not as good as T3. If your daughter has WS but either you cannot find a pharamacy who makes T3 or need more info on the illness, let me know. Taking synthroid only worsens things as you overdose with T4 but still don't have the needed T3. Even most thyroid doctors will test then pronounce the thyroid to be ok or prescribe synthroid.
Basically, NOTHING works unless metabolism is working and it almost stops below 97. Only at 50% even at 98. Finding the proper amount of T3 to take is "cut and try". Read the WS Web site.
I'm guessing she probably has WS. Most people with Lyme for over a year develop WS but do not know it nor treat it. This is one of the biggest things in Lyme treatment that is most overlooked.
I took T3 stabilizing at 15 mcg 2x day for some months. I'd stop only to have my temp fall again. Eventually I could stop and my temp stayed at 98.6. That meant my body was again producing T3. It "relearned" how to make T3. It's like "jump starting" a car.
All the prescriptions and herbals in the world are worthless if your metabolism is low and thus not making uses of meds/nutrients. They just pass through the body.
I wasn't paying attention and WS returned. My body temp dropped to 92 degrees. I've now been back on T3 long enough to return to 98.6.
But while the WS had reoccurred various illnesses came back. Lyme flared up but, also, "beta strep" reappeared. Constant sore throat and no energy. Strep throat tests positive so a doctor will prescribe Amoxicillin, Zithromax or some other antibiotic. It MIGHT stop it for a month or two but then it returns.
The Lyme doctor I did see knows how to treat beta strep. I am trying to avoid seeing her again as she is very expensive plus insists on thousands of dollars of tests and more meds and herbals. I know all of the correct treatments but I need a doctor to rite prescriptions. Easier said than done.
At my age (64) I have given up on ever returning to full health so I just want to treat the side infections when they occur. They are, to me, worse than Lyme itself. I saw my primary care doctor yesterday but he refuses to do what the Lyme doctor did. Says it is "not standard procedure". Well, "regular" doctors can't even suppress Lyme following medical school guidelines. He did treat me for strep and it MAY go away for a few weeks. It appears I have no choice but to return to the Lyme doctor and spend thousands of dollars to get rid of beta strep even though a few prescriptions would fix it. I've been through it enough to know all of methods of treatment.
I hope the herbals help but I know of no one with beta strep (or even Lyme) who has been helped much, or at all, with herbals. I take several myself but notice no difference.
Here is the treatment for beta strep. Nothing else worked but this did. 1. First fix Wilsons Syndrome if you have it by taking T3. Get metabolism working again. Doing anything in the meantime is a waste of meds and whatever else. 2. Have one per week shots (doctor's office) for 12 weeks 2.4 million units of L.A. Bicillin. My sore throat stopped after the sixth shot. I received ONE of these shots yesterday but my primary care refuses to do more as he says "medical science says one shot is all that is needed". Wrong - for those with Lyme. 3. Self inject three times a week 1,000 mcg Cyanocobalamin. You get a prescription for the liquid and a sack of needles/syringes. This is concentrated B12. Taking B12 orally is not enough as the kidneys and liver remove 98% of B12 taken orally. The doctor refused to give me even one shot. I'm trying to overdose on oral B12 but I know it is a waste of time. 4. Take a rotating regime of oral antibiotics - each for two weeks for the 12 weeks. Zithromax, Ceftin and Doxycycline. He was willing to prescribe amoxocillin but nothing more.
Of order of importance (1)get body temp back to 98.6 (2)take the 12 weeks of shots in the doctor's office (take the oral antibiotics) and (4) the rotation of antibiotics. my Anyway, WITH metabolism working again (having stopped Wilson's Syndrome), these 12 shots over a 12 week period plus injections of B12 three times a week during that same period cured the beta strep.
As I say, my mistake for not taking my body temp for the last year. I used to do it every few days and when it began to drop I"d take T3 and it would return to 98.6. I let my metabolism almost stop and in came beta strep. Plus the Lyme worsened. I know the best mix of drugs for suppressing Lyme and can give you the info if you want it. I am rarely on this site so put w0tm into Google to find me (the 0 is a zero not the letter o). I can't remember if putting your e-mail address on a post is allowed or not.
You can put beta strep into Google to read about it. Wikipedia has the best write-up. Few doctors know of it but it is very common to have with Lyme. The side issues of babesesia, bartonella, WS and beta strep bothered me far more than Lyme.
Yes, try the herbals but, as I say, I know of none that have ever touched beta strep or even strep on anyone - especially if you have Lyme.
I can't repeat Wilson's Syndrome too much as until you get body temp to normal no meds or herbals work - zero - nada.
Fel free to write me if you have questions. As I say I also know the best protocol for suppressing Lyme that only came from seeing many doctors and talking to hundreds of others who had been treated for Lyme. 99% of treatments are worthless while this group of antibiotics works. Getting a regular doctor to prescribe three antibiotics will be impossible so you'll need a holistic minded Lyme doctor. But it suppresses Lyme by 90% or so.
I'd still be feeling OK if I had just watched my body temp but I got out of the habit and WS reappeared and my metabolism ground to a halt. Vitamins and herbals stopped working. My body pH turned very acidic and the combination allowed beta strep plus other problems to reappear. Getting pH well above 6.0 is also mandatory for meds to work. www.yantis.us/detox for more info.
For anyone else reading this - I got my question answered. I had been given 12 weeks of 2.4 mu L.A. Bicillin. So question answered.
Take care, Gary in Kansas
Posts: 133 | From Shawnee, KS | Registered: Sep 2007
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map1131
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Gary in Kansas, thank you so much for all this great info. I'm seeing endocrine specialist due to my thyroid anti-bodies test saying I have Hashimoto's.
I've been hypo for about 30 yrs, before lyme (?). My PCP has been testing my T3 & 4 and such for 12 yrs. I was on 125 for years and during this lyme & co stuff he bumped me up to 150 due to test results.
Probably been on 150 for 2 yrs. PCP has suspection that something changed and I started going backwards in everyway. Anti-bodies attacking my dead thyroid were very high. So now I'm labeled auto-immune disease Hashimoto's. I've known I had an auto-immune illness for years doc. It's called lyme & co. Duh!!!!
Recently I did some reading on Wilson Symdrome and printed out the temp chart but didn't follow through. I've never had a normal body temp in years.
I've always been 96. to 97. If I'm 98.6 or 99, I'm feeling cold/flu sx/sore throat. I know when my body temp is high at 98.6, I feel like I have a temp. Like normal healthy folks do when they feel feverish.
I also have known for 5 yrs that running strep and staph freqs with my rife machine is how I control feelings of sore throat, real flu, earaches etc.
This strep or staph, to me it's a different sx feel than lyme, bart etc. I discovered running strep and staph and feeling better with a muscle testing doc I seen for a few yrs.
Strep and staph came up many times with muscle testing on me. I remember doing rife sessions for this 2-3 times a day for several days and feeling better for periods.
But they always seem to creep back in control. So you're thread makes sense to me. I wouldn't personally go with the abx for myself, just too toxic for me.
Thank you again for bringing Wilson's Syndrome to the front for me. I've just pulled my Wilson temp chart out of my lyme & co to do pile and starting tomorrow....
Back to the thermometer!
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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You're the first person with low body temp who reported going up to 98.6 made them feel worse. Dr. Wilson answers many inquiries personally and one like yours I'm sure he would. Go to his Web site and tell him your story. He may have info to help you. Good luck! Gary
Posts: 133 | From Shawnee, KS | Registered: Sep 2007
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map1131
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Well the 98.6 means my body is fighting some unknown cold virus, flu virus. So I'm feeling worse because my immune system is shouting which way do I go? Which way do I go?
So it's that, I'm not feeling good fighting this little viral infection. I'm not feeling bad with normal temp. Do you understand what I'm saying?
The 1st year of this nightmare of lyme & co I ran a temp everyday, usually in late afternoon of over 100.
In the 10+ yrs since then, if another virus is in my body I've never been over 99.6. But I will feel as if I'm 101 or more.
Well, I've started charting. So I'll see if Wilson's is possible.
Thanks, Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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I've learned in my many years with Lyme and since learning of WS that most or at least many people with Lyme also have WS. Until they get the WS taken care of their metabolism in stuck in first gear and meds, nutrients, etc. pass right thru the body doing nothing. I wasted probably $40,000 worth of meds before I learned of WS. After getting back to 98.6 the meds began to work. Doctors should always be concerned of low temp - not just high temp. They should also use pH stix to check body pH. If pH is too acidic you invite illnesses into your body. Need to be 6.8 to 7.5.
I've never heard of your situation. I strongly recommend you write Dr. Wilson. He will respond and try to help you.
Also - only recently has there been accurate testing of T3 in body but there is now. Ask Dr. Wilson for labs that accurately check T3. Too many labs and doctos just test T4 then assume T3 is automatically ok.
Posts: 133 | From Shawnee, KS | Registered: Sep 2007
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momlyme
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No one in my family is ever above 6.2 in PH and our temperature rarely gets above 97. My daughter is frequently in the 95.8-96.2 range (she is the lowest)
Is there ever another reason for the low body temperature or is this always WS and treated with synthetic T3?
Are there any side effects to taking synthetic T3?
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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map1131
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Well sure enough the last two days I've had earaches and sore throat. Could be lyme & co or could be staph or strep is stirred up.
This time of year it could be allergy related. but I doubt that based on my history.
Body temp has been normal or 98.3 lowest. Like I'm a normal person. But with the amount of Advil I've been taking for aches and pains, Advil could be lowering temp.
I have been running staph and strep freqs and my ears and throat have improved. Today I didn't use my rife and my ears are not happy tonight.
Can't disturb my spouse by going into bedroom, so I must wait until tomorrow morning.
Gary, I've not done any research on beta strep yet. I will. I feel you pain about money spend and most of it down the drain.
I'm in that 6 digit $$$ amount with you. But after 3 yrs of abx in the early years...abx be came the enemy. I was a walking toxin and feeling slow death at 43 yrs young. There is no way I would/could go back and take 3 abx together.
By the grace of God, I was introduced to the rife machine. I dropped some big bills for it and I've not regretted it.
The puzzle solving continues not knowing what exactly ALL has invaded my body. I've been tick bite several times and brown recluse spider bite in the last 6-7 yrs.
No telling what they all left behind.
Thanks Gary for sharing what you've discovered. Beta Strep, interesting.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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We understand each other. Even the doctors who treat us are at a loss to truly understand how we feel. Lyme sufferers are a special group of which none of us wish to be in it, would trade ten years of our lives to leave it but at least we understand each other. Lymenet was a Godsend to me when I first discovered it years ago.
I had an older doctor tell me one time just as he was retiring "doctors and medical science understands less than one percent of the human body and even that one percent most of it we just guess at". I was taken aback by his comment but I realized as I traveled the road from doctor to doctor in my almost two decade quest to regain my health that he was just being honest.
I did learn years ago a Lyme sufferer and really anyone with an illness poorly understood must be their own "patient advocate". No one else will do it for you. You have to discover ways to help yourself and sometimes even battle doctors to obtain medications they are the gatekeepers of. Extreme frustration when you are already sufferinf so much to have to argue with doctors who automatically assume the patient knows the least of anyone about their illness.
I had not heard of beta strep either until one very smart Lyme specialist diagnosed me with it. When I was diagnosed with it there was nothing on the Internet about it. I notice there are now dozens of Web sites detailing the illness and even Wikipedia has a full page on it.
From the 2.4 mu shot of LA bicillin I was given last week and taking amoxicillin three times a day I am feeling much better. Now, if only the doctor would have continued the needed treatment I could break loose from it for several years. But I know I'll be back in his office in six weeks again complaining of a burning throat and so weak I can barely stand. But I'll have a few weeks of an almost normal life.
As you fight beta strep (if you do have it) or any other illness keep Wilson's Syndrome in mind. If your metabolism is stuck in low gear (signified by a body temp of below 98 degrees) no prescribed meds, nutrients or herbals will do you the slightest bit of good. Get your metabolism working first. NOTHING you ingest or is given to you via IV will do anything to help you until your metabolism is functioning
Take care, Gary
Posts: 133 | From Shawnee, KS | Registered: Sep 2007
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