posted
My daughter has been very ill this week.. She's on Flagyl, has body aches/pains, shooting head pains, migraines, numbness on and off, legs shaking/trembling, body weak like jello, night sweats, cold in the day. She has babesia and I'm hoping the flagyl is finally hitting it after 6 weeks of being on this particular med. She has been bedridden for four days now. She has herxed before a couple days here, couple days there, but never this bad this long. Is this normal? Please share your stories of herxing while treating babs? Does any of this sound familiar?
Posts: 163 | From Central New Jersey | Registered: Jan 2010
| IP: Logged |
posted
IMO she should back off the meds a day or 2 and let the herx calm down.
-------------------- LSG Scott Posts: 513 | From Boston, Cape Cod, Mass | Registered: Aug 2009
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
As far as I know I didn't have/had babs. I did do flagyl for a time for lyme cyst buster.
It was the worse herx of years of experience with many different abx and combo. I found out pretty quickly that Flagyl me and dosage LLMD rx'ed were not going to work.
I went to slivers like my LLMD suggested and still was unable to function. It was pretty much me on the couch barely able to shower, go restroom or fix myself something.
It put me so deep into "the tunnel" what I called depression and hurting from head to toe. Very toxic feeling.
I finally settled on a sliver or two a day for 3-4 days. Stopped flagyl for 5 days and detoxed and tried to came back to life.
Mental issues were so bad that as I recall I was only able to cope with flagyl protocol for a few months.
Never made it past slivers.
I hope someone with babs can help you. Does your daughter have lyme also?
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
posted
Not sure what slivers is, that's first time I heard of this. Doc is backing off the meds for a day or two and then taking her off flagyl. He thinks it's making her herx way to hard. She does have depression too - I hope that lifts when the flagy stops as well.
Yes, she does have lyme also... It's been a long tough road
Posts: 163 | From Central New Jersey | Registered: Jan 2010
| IP: Logged |
posted
Some questions about Flagyl. I will start it this week to go after the cysts. None of the above comments are making me look forward to the experience. How many days per week were you taking it and at what dosage? Do you think the bad reaction was to the drug or a Herx?
Posts: 29 | From East Tennessee | Registered: Nov 2010
| IP: Logged |
posted
Now that I have gotten past the worst part of babesia,I can say i was sick and pretty out of my mind for 3-4 months. I did not use flagyl. Somedays worse than others,but pretty koo koo the whole time. Head is clear now and no more sadness or anxiety
Posts: 342 | From northern california | Registered: Dec 2010
| IP: Logged |
chiquita incognita
Unregistered
posted
My LLMD says that herx's last 3-7 days. Anything longer than that is a side-effect, he said.
Definitely stay in touch with her doctor about this.
Something that helped me with shakes et al is coconut oil rubs topically, all over the body. I slather it on alongside the spinal cord on both sides, to get to the nerve root, and along any affected areas of the body. Usually I rub it on all over, from the back of my neck to the soles of my feet. It has helped me a lot!
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Flagyl was a turn around drug for my daughter. She experienced improvement from the day she started. I know this is unusual as most seem to have a hard time with it but it really helped her. That and parasite treatment.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic