janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
morning all,, Been up since three with buzzing, headache fullness, light show in head when eyes are closed.
real lovely stuff.
See the llmd on Monday.
Also the crying/anxiety.
Does this sound like bart??? Pretty scared today.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
up
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Maybe. Not sure. Buzzin can also be lyme.
Where is the headache?
I had a "light show in my head" pre dx (a year ago.) I konw how you feel.
Have you tried Factive?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
wish that i could say JV, which infection it is...are you treating bart? fwiw, i have the light shows with eyes closed all the time. and head sensations wake me out of sleep...brain shivers, etc.
IT COULD BE BART! bea seibert has said that bartonella loves to be active at night...and for me, my sx are many times worse then.
scary stuff indeed.
Posts: 3975 | From usa | Registered: Aug 2007
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posted
feelfit, how long have you had the brain shivers for?!! I have that too, and it's not getting better with abx...
Posts: 723 | From Montreal | Registered: Oct 2010
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-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
shahbah- have had the 'brain shivers' on and off for 3+ years...not daily, but enough....and you never forget this feeling Posts: 3975 | From usa | Registered: Aug 2007
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posted
Feelfit, I know that very well, I've had them for 2 and a half years... My head fullness is there ALL the time, you're lucky it comes and goes:-)
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
This is a symptom I had 25 years ago. I just learned that it's an Ocular Migraine. A zig-zag line of sparkles and flashes would start in my peripheral vision and intensify until it completely blocked out my field of vision. This would come on for about 30 seconds, fade away for a minute and return. It repeated this cycle for 3 days before finally stopping. Had a neurologist examine me while it was happening and he had no explanation. Recently I've read of many people with lyme experiencing this same phenomenon to different degrees. I've been told it's believed to be related to Bart. I've also experienced the 'brain zaps' for years.
posted
bbcoach, do you mean you got now rid of those symptoms? how long did it take you?
Posts: 723 | From Montreal | Registered: Oct 2010
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posted
I had brain shocks and they stopped after 4 months on omnicef and zithromax, I was still off balance at times but no shocks..
Then came the rifampin last week..after two pills I had more shocks that were constant, horrible nerve issues. My head was zapping for a whole week now. My llmd stopped the med right away but still my ears are ringing so loudly that I cant think and I am being thrown from side to side.
Did any of you use that medication and get the same affect from it. I lived 30 years with brain shocks but this was unreal. I was told it was bart that went rampid with the rifampin
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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