Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Lyme is mentioned about half way down.
Everyone should place a comment and flood the site with information about this illness and resources and links to help inform the public and bring about Lyme awareness.
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
"easily cure" oy vey
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Oy vey is right. I hope everyone will place a comment on Huff post. It's a great opportunity for public out reach. We need to make our voices heard where ever we can.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I posted my rebuttal:
The truth about Lyme Disease is being withheld from the public and has been for many years. It is not easily curable, the tests are highly unreliable making it a clinical diagnoses and a tick does not have to be attached for 24 hours to infect you. You can pick up a host of other infections from a tick bite, as well.
Everyone should see this great documentar�y "Under Our Skin" and educate themselves about this illness, as your average doctor will not. In fact, as hard as it is to believe it's the truth that you will not get help from your average doctor but you but you will be misdiagnos�ed with anything ranging to autoimmune issues, RA, ALS, Dementia, Parkinsons�, MS, mental illness, Lupus, CFS, FMS and the list goes on.
The spirochete that causes Lyme Disease is the cousin to the one that causes syphilis. Before antibiotic�s were discovered syphilis was known as "the great imitator", as it mimicked so many other illnesses. Lyme Disease and it's associated co-infecti�ons are the modern day "Great Imitator".
You can find plenty of resources on this site, as well as informatio�n on the Lyme Disease documentar�y, "Under Our Skin".
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
ABX: Great post.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Thank you. I hope others will chime in.
We can't afford to miss any opportunity to make our voices hear.
Even if we affect only one life it will make a difference!
posted
I just sent them a response that their information wasn't accurate. I hope everybody sends them a message.
Posts: 20 | From Maryland | Registered: Nov 2004
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Great and thank you! I'm so glad that you did. I placed several posts and responded to several of the comments.
I hope everyone responds, too.
So much misinformation even among the posters....the public is so clueless and the press keeps them that way.
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
ABX: I just posted underneath your comment there
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Hi,
I just saw it. Thanks.
How about everyone else? There are so few comments that have been posted and we are a group that certainly has a lot to say about this illness!
Please take the time to post a comment and make your voices heard:
momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I just commented. Don't know how much good it will do. What a crappy article. Bogus information.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Thanks LymeMom. They are almost always full of misinformation.
That's why it's so important for us to speak out and make our voices heard.
If only one person benefits from our comments that will be one person more who will get help instead of being misdiagnosed.
Every one please take the time to post a comment and make your voice heard:
momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I know Abx. It just gets so frustrating.
All I want is my family to not be sick.
And the extended family to stop BELIEVING WHAT THE MEDIA SAYS!
This "easily cured" stuff needs to be stopped.
You are right. Everyone should comment. The world needs to know and we need to tell them.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I so agree MomLyme. Your post was excellent, BTW.
How about some more folks posting? It's an opportunity to get the truth out, inform people, and save lives.
Place a comment on Huff Post in response to the usual misinformation about Lyme Disease.
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
You can read the B.S. misinformation here:
"Blacklegged tick species, commonly called deer ticks, that are as small as poppy seeds can transmit Lyme disease. The Centers for Disease Control and Prevention counted more than 35,000 confirmed or probable cases of Lyme in 2009, the latest data available. These ticks are most active from May through July, and are most common in the Northeast, mid-Atlantic, upper Midwest and Pacific coast.
If a tick's been biting for less than 24 hours, chances of infection are small. So do a daily tick check. And the CDC recommends using insect repellent with DEET.
Antibiotics easily cure most people of Lyme. But other than Lyme's hallmark round, red rash, early symptoms are vague and flu-like. People who aren't treated can develop arthritis, meningitis and some other serious illnesses.
Different tick species around the country can transmit additional diseases, such as Rocky Mountain spotted fever, tickborne relapsing fever, and STARI or Southern tick-associated rash illness."
What do you think? It's the IDSA lies.
It would be great if more people would leave comments to correct this misinformation:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/