17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Who ever heard of an author you can correspond with? He better watch out - hope he has an answering machine!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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onbam
Unregistered
posted
Quote: "By no means, persistent infection by B. burgdorferi is probably rare, and many patients seeking information on Lyme disease most likely do not have a persistent infection."
Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
It's good in the sense that doctors can be egomaniacs. When they do not have an answer, they will often call their patients headcases. In reality, the patient often has real physical symptoms without prior or current mental health issues.
It is much easier for doctors to throw things under the umbrella of mental illness than to actually investigate unusual symptoms (what they should try to do).
Unfortunately, there are few real life Dr. Houses.
I do disagree with their assertion that persistent infection is rare. Notice how they say "probably" rare. They are not real sure themselves. It does not instill confidence.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
well i'm gonna be positive and post this:
"We as doctors should not blame them for our limited capacity to address unexplained physical symptoms."
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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onbam
Unregistered
posted
Steere said exactly that at the end of one of his NYTimes interviews.
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Ha! That's funny!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
"By no means, persistent infection by B. burgdorferi is probably rare, and many patients seeking information on Lyme disease most likely do not have a persistent infection."
I agree with the first half of this statement but disagree with the second.
Many people who get LD and are diagnosed and treated early are cured. A smaller percentage of people either fail to get diagnosed or fail to receive adequate treatment, and those are the people who search for information on Lyme disease online.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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posted
One of my biggest supporters was and is my psychiatrist. Long ago she told me that I was remarkably UNdepressed, considering how sick I was. Now that we know I have a number of infections, thanks to a great LLMD, she is carefully screening all of her patients and has found more of them with this misery.
It was her idea to sponsor a physician's conference to teach diagnosis and treatment techniques. I have three docs on board so far. But with my new rounds of Flagyl/Ketek, lymph therapy and 5 new room mates (our son and his family have joined us) my plate is full.
Testing for all these illnesses is tricky, but I have documented infections and can show, by the tests and numbers, how much better I am getting on the abx. My family is so pleased with my progress, as are my doctors.
Anyone living in Northern California who wants to help set up the doctors' conference can contact me and maybe we can pool our energy.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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posted
I actually think it was a pretty good article. He seems to be emphasizing the lack of good tests and understands that symptoms after so-called adequate treatment might even be due to continued infection.
He says patients with strep throat treated with antibiotics who still have symptoms are not routinely told it can't possibly be strep and Lyme patients shouldn't be treated any differently.
He says patients with ongoing symptoms are naturally going to seek treatment and should be treated with respect.
Posts: 984 | From US | Registered: Dec 2007
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
One of my favorite spots is where they say people using the term Post Lyme Disease Syndrome (PLDS) are using "deceitful terminology".
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