posted
I have chronic lyme and symptoms which point to bartonella. I started on oral antibiotics in Feb and the regimen was changed again in March. There is no apparent improvement. How long should I try this before going to IV antibiotics?
Posts: 33 | From Silver SPring, MD | Registered: Sep 2010
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
2yrs of orals, many types of abx, many combos. I believe it was fairly early stages??
I did 6 weeks of IV Rochepin because I thought it would help because I had turned very chronic. Insurance fight to get that much. For those hefty charges my insurnace paid for I got 1 day of feel better.
I really didn't want to continue. My heart was already telling me this is not my answer.
Two weeks after stopping this IV, was my 1st visit to my LLMD. He did Western Blot .....
I had IgM 8 positive bands with a ++ and a +++. with 3 eqivicals.
So then I had a test that backed my crazy sx and history.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6495 | From Louisville, Ky | Registered: Jan 2002
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make sure you absolutely test your absorption rate,
you may need a really high dose in order for your body to absorb the antibiotic,
my daughter's orals are half of my dose!
I feel sick every day, but am slowly improving.
It took 9 months to get the dose up high enough,
I am treating Babesia for a year.
Bartonella for 3 months.
-------------------- I am not a doctor. I have no clue. Posts: 606 | From somewhere out there | Registered: Sep 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
" 2yrs of orals, many types of abx, many combos. I believe it was fairly early stages??
I did 6 weeks of IV Rochepin because I thought it would help because I had turned very chronic. Insurance fight to get that much. For those hefty charges my insurnace paid for I got 1 day of feel better."
above is good info
studies do not show IV is better
there can be significant infection issues with IV
some ppl cannot tolerate oral abx and then their choice is IV or herbs and other tx
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Three months on orals then switched to IV.
Was only on IV for about 6 weeks then had to pull line due to infection.
Went back to orals. Been on and off orals and re-infected over the past 5 years. I am now consistantly at about 75% back to feeling like old self again. Orals worked for me and I had late stage//neuro. I use the word "had" because I really do not feel as if lyme as the best of me at this point. Now all the ticks I am pulling off my dog and the ones I find crawling on me after being out on the trails - well that could certainly put me back to square one pretty quickly.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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posted
My daughter did orals for 3 years, at one point reaching about 75% back to health, then relapse. We kept thinking it would get better after that and it didn't. We knocked back a lot but it came back. Her Bart streaks and other symptoms increased and it became clear that it was time for IV.
Posts: 118 | From Here | Registered: Sep 2008
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posted
'Did 5 months of orals...no improvement...I am strictly neuro/brain...no fatigue or joint pain...orals did nothing...then went to IV...7 months of a picc line, but only infused meds for 4.5 months of it...10 weeks IV rocephin, a break, then 8 weeks IV doxy...the IV doxy made me worse...by far! I was on orals along with the IV...unfortunately, the IV was not a magic bullet for me...nothing seems to be working...very, very frustrating.
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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