posted
now I know that this is not an easy question to answer. I know that there are many strains of lyme and many factors play into how long it takes to kill it and feel totally better. Factors such as co-infections, how long youve had the lyme disease, your over all health, how you take care of yourself. your bodies ability to detox etc etc
HOWEVER. lets say the person has no coinfections and is in good health and detoxes well and theyve had it for YEARS. at least 5 years. what is the average amount of time you think theyd have to be on meds in order to get completley better. like whats the VERY LEAST that theyd have to stay on the meds?!? I'm lookin for a ball park figure from your experiences and knowledge
THANK YOU !!!!
Posts: 995 | From somewhere out there | Registered: Oct 2010
| IP: Logged |
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I would guess a year. But most people are co-infected.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
| IP: Logged |
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
12-18 months if you approximate what most LLMD's have reported.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I've been in treatment for almost 4 years now. Only had about 6
months, all last year, during which I had no symptoms.
have no coinfections to my knowledge, got treated with the CDC's
30 days of 200 mg/doxy right after my bite (it did absolutely
nothing, and not asking for 400 is the biggest regret
of my life), and had no health problems before getting it.
IP: Logged |
Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
I will never forget my first LLMD visit and she said 2 years.....maybe 3
It felt exactly like a judge reading me my sentence
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
i believe i read somewhere 3 mos of cure for every year ill
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
There's nothing typical about lyme. I don't know how anyone can predict. I've known some who have been in treatment for eight years and with Dr. B.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
i meant treatment - 3 mos of treatment for evry year ill... sorry its been along day and it aint over yet..
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
posted
Big guess .. two years (according to the conditions you posted)
payne... If that were true, I'd be treating the rest of my life and beyond. But I'm well!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
from one of the best LLMD's we have: expect to treat one year for every year you've been infected.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Oh, please say that isn't so. I've been infected for 30 years, my sister for 29, my oldest for 18, youngest for 15 and my nephew for 5. We need this insane ride of Lyme disease to have a getting off point. We are all on the mend so I'm going to stay positive that we wrap up treatment in 2 years.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
| IP: Logged |
quote:Originally posted by sometimesdilly: from one of the best LLMD's we have: expect to treat one year for every year you've been infected.
- None of these formulas can be true... especially for those infected for 40+ yrs.
--or 30+ dommer~!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I remember reading and I think it was Dr B. I'm pretty darn sure it was him.
Seven years was an average for those that had been chronic from early on and those that had it for years without tx.
There was something about the 7 yr mark? Anyone else remember reading this from Dr B? Seems like this was from years ago before he left practicing/seeing patients.
Pam
I also don't recall him using the "cure" word. He was speaking of feeling better and getting ahead of the horrible early tx with abx?
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
posted
I think *we* talked about this recently...-cure- particularly for those with long term chronic Lyme may not be possible as it is suggested that it is impossible to get ALL the bacteria in ALL its forms.
HOWEVER, it is possible to go into remission, long term or permanently? with diligence to diet, exercise, immune support, etc...but many of us are left with the aftermath of treatment: the damage from long term meds, bacteria damage, etc.
To paint a realistic picture...there is no cookie-cutter time frame. There are SO many variables, and until the gov't agencies can get their thumbs out of you-know-where and recognize this disease and give it the attention it deserves....this is really the best we can hope for. Permanent remission.
Posts: 206 | From In the shadow of a mountain | Registered: Feb 2011
| IP: Logged |
posted
nothing typical about lyme so theres nothing typical about how long one should treat for.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
| IP: Logged |
posted
I definatly know its one of those things that takes a while. i was just wondering what the average time stood at.
Posts: 995 | From somewhere out there | Registered: Oct 2010
| IP: Logged |
Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by sometimesdilly: from one of the best LLMD's we have: expect to treat one year for every year you've been infected.
Shoot me now. Posts: 1142 | From South | Registered: Dec 2010
| IP: Logged |
posted
it seems like 2 years is about average for CHRONIC lyme. like years of lyme
Posts: 995 | From somewhere out there | Registered: Oct 2010
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Don't want to be a kill joy be no one can predict that. No one has even unlocked the absolute way to get rid of it so how can we predict how long it will take and every case is different.
Take a look at how long some have been on this forum and are still treating. This is a very complicated illness.
I wish you a speedy journey through this illness, that's all can say.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
lymeboy
Unregistered
posted
I feel like this is an impossible question to answer. I wish I knew....
IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
My answer keeps getting longer and LONGER.
When I was first diagnosed I was sure I only had Bb and would be cured in a few months. Now it is over three years into treatment and I know I have three infections.
Still I am optimistic - it won't be much longer. I was sick for one and a half years so for me recovery takes twice as long as being sick.
I don't believe many people only have lyme. That is the first big mistake I made.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic