posted
Hi!! It's been a long time since I posted. Recently I have been having some odd problems. Arthritic problems in my left knee, some pain at night in large joints, numbness and tingling in my toes and fingers and photosensitivity. I told my DR my history with Lyme (diagnosed and treated in 2009 - don't think there was much time between the bite/symptoms and treatment.) She was very cool about Lyme - she believes - but I don't think she knows all that much about it. My Lyme titer came back with 3 IGG bands (23, 39 and 41) and IGM band 23 as reactive. She really couldn't articulate what that means, but she told me it didn't fit the criteria for further exploration. So here I am wondering.
Is this something to be worried about or is it par for the course when you have Lyme.
Thanks!!
Posts: 6 | From PA | Registered: Jun 2009
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Your symptoms and test results suggest a possible re-activation of Lyme (or re-exposure), but I am not a doctor and cannot diagnose you.
If I were you, I'd consult with a Lyme-Literate MD who can interpret your test results more accurately than your current doctor.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
| IP: Logged |
quote:Originally posted by McStorch: ... My Lyme titer came back with 3 IGG bands (23, 39 and 41) and IGM band 23 as reactive. She really couldn't articulate what that means, but she told me it didn't fit the criteria for further exploration.
- She's very wrong and uninformed. Bands 23 and 39 are VERY specific for Lyme. The test you had is a Western Blot, not a titer.
"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
--be sure to read the info in the link!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Wow . . . I should also add that the reason I was seeing her was that I have an enlarged lymph node in my neck (all tests came back that it is fine) and I presented today with a slight fever.
Should I be asking for antibiotics again? Does this mean I might have active Lyme again? I don't think it is a new infection based on timing and where i live, but can an old infection flare again?
Also, there are no LLMD's in my area.
Posts: 6 | From PA | Registered: Jun 2009
| IP: Logged |
posted
Thanks for all your advice. I might try to see and infectious disease specialist, but there are no LLMDs up here.
The Bart . . . Bartonella? Would that be a new infection or like the Lyme, just rattlin' around in my system for the last 2 years?
Posts: 6 | From PA | Registered: Jun 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic