Topic: Been on Babs treatment for a little over a month with ZERO improvement of air hunger
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
symptoms. I am starting to really worry.
I know it takes a long time for treatment but shouldn't it have improved a little?
on Mepron, Zith and Artemesia
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Took my daughter over 6 weeks for fevers to start to alleviate, over 4 months for breathing improvements, over 6 months for the night sweats to taper off.
We are at 10 months and its only in the last few weeks I think the BABs symptoms are gone and its only lyme.
Still on Mepron and Zith for another 2 months.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
I have been on babesia treatment for 55 days. though i have been using bactrim and artemisinin and my air hunger didn t decresase, even increase when ı start pulse artemisin treatment while use bactrim (There isn t mepron in Turkey)
Posts: 182 | From turkey | Registered: Jan 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
t9- so I guess I should give it more time.
Air hunger is my only babs symptom
seeing Pulmonologist to rule out anything else that could be causing it.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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-------------------- Oct 09 Positive CDC Western Blot Jan 10 Positive Babesia Duncani Jan 10 Cd57 28 Mar 10 EBV, IgM, IgG HHV-6 IgG Posts: 739 | From NC | Registered: Oct 2009
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posted
Did you notice anything from the Mepron? Not as far as improvement in symptoms, but anything unusual? Fevers, sweating, flu-like symptoms, dizziness?
When I did Mepron, my situation wasn't that different. As after a month, my breathing wasn't better.
But I had mixed results though. First two weeks it felt like my breathing improved a little, but by the 3rd-4th week it was lousy again. But I also felt 'feverish' types symptoms with hot flashes that would come and go and got a little sweaty a couple of nights. And then I finally got all itchy with mild rashes, so we stopped. So I am guessing it may have been killing some Babesia, or was a side-effect of the med, but all I know is that I still can't breathe very well...
The longterm treatment thing confuses me a little with mepron. My ILADs doc says basically the opposite of what many here say... he says some improvement should be seen within 1-2 months and full treatment typically is 4-5 months or so (but it depends a lot on the patient).
Probably a good idea to take it at least another month and see how you do. And it's worth seeing the pulmonologist. If you have any asthma-stuff going on, you can do a trial of meds and see if it helps (expect to be offered steroid inhalers though).
Posts: 584 | From NY | Registered: Feb 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Lemon-Lyme, my llmd said the same thing- I wonder if we go to the same guy.
I tried the asthma inhalers with no improvement.
I never had asthma issues or allergies in my life.
I don't notice any change on Mepron. I had a mild rash under my arms for a few days, but that's it.
No flu-like, no sweats, nothing. :/
Who even knows if this is Babesia.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Dr B says that "It has also been reported that Babesia infections can range in severity from mild subclinical infections, to fulminant, potentially life threatening illness."
Therefore I think that every case varies and some people require longer treatment to see results.
My LLMD said it took him a year of Babesia treatment to get better.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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