posted
Hi, I finally got my results from the new llmd today. I am feeling a little confused by it because it also has a note about not meeting CDC criteria to be positive for Lyme.
Please Help me interpret these results:
Lyme WB IgM: Indeterminate IGM Bands 41 Igm Nonspecific bands were also detected. (31,66,72,93)
IGG Bands (kDa): 41 IgG Nonspecific bands were also detected. (72)
Posts: 39 | From NY | Registered: Feb 2011
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posted
Looks like you tested negative on both the IgM and IgG western blot. Keep in mind, however, that both tests are only around 70-80 sensitive; i.e., each test has a false negative rate of about 20-30 percent.
Posts: 2 | From U.S. | Registered: Apr 2011
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posted
Ok, so....the llmd wants me to go on aggressive oral antibiotic treatment for 3 months.
She is starting me slowly with 1 antibiotic, testing levels in 2 weeks, adding a second antibiotic, testing again in 2 more weeks, then adding a 3rd antibiotic...then I will be on 3 antibiotics at the end of it until 3 months.
Is it right to do this if I seem negative?
I am a bit skeptical, although, I bought the first antibiotic right away.
Posts: 39 | From NY | Registered: Feb 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Your test is negative for tracking purposes, but you do have Lyme-specific bands (band 31, band 93) and that is probably why the doctor wants to retest after an abx challenge.
The tests are very insensitive, especially in chronic Lyme, because the immune system response required to have a positive test is usually suppressed in chronic Lyme.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
Regardless if the test is negative or positive, if you have the clinical symptoms and can rule out mono, strep, anemia, etc. etc. then you have it probably, if all factors are in place. One way to know for sure, if you herx after taking antibiotics, that'll tell ya for sure.
Heck, I herxed on the low dose that regular MD's give! I knew then..... If your doc is LL, then follow his/her direction. Monitor your symptoms. Good luck!!1
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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posted
I had the same thing done. My igenex looked like yours and my doc gave me omincef, then added zithro and took another test in two months.
I had many more ind and positive bands show up but still CDC negative. I have been on omnicef now for 5 months and my llmd will take another test next month to see if the bands go positive. This will help get my insurance to pay for IV therapy and help my SSD case to see positive testings..
You will know if you have lyme if your symptoms get a bit worse instead of better after taking the abx..that is whay happened with me. Good luck
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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