posted
so i did Coartem 4 weeks ago and now i'm not doing that great
has anyone else tried this stuff and just seem to get worse a few weeks after taking it.
i dont know if it is a babs herx this far away from taking it or what,
but i have had a flood of babs Symptoms come on crazy tired, spaciness,feel very flu-ish
just went off all meds per doc orders to try and clear it up but i'm no better after 4-5 days off
please advise if you can, i feel like i am back to square one.
-------------------- LSG Scott Posts: 513 | From Boston, Cape Cod, Mass | Registered: Aug 2009
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Hey Scott..sorry to hear of the slide. I haven't tried Coartem, so I'm afraid I'm not much help.
A couple of thoughts:
-Have you tried Artemisinin? Our LLMD had me go on it. Just started on Sunday. So far so good. Haven't had night sweats the last 3 nights. I take 1 capsule 3x / day, 3 weeks on, 1 week off.
-What about yeast? Have you tried diflucan? (I haven't). But I know yeast can cause similar symptoms.
The thing I hate most about this disease is not knowing what is what.
Hope you start feeling better.
BTW..there will be an article about the UOS screening on 5/11 in the Boston Globe South tomorrow. There was one in the Duxbury Clipper last week.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
Hi All I can tell you is my son instantly had a reaction of flu symptoms from that drug for about 2 weeks. He only took it for 3 days and was suppose to take it for 7 days. The sweats were drenching and the dryness was unbearable (skin, mouth, and mucous membranes). The drug did seem to stay with him, like you said, even when off the symptoms continued. All he said was, it was hell and he would never recommend it to anyone. He is on ABABS, they are supplemental drops for Babs: $80 That is all he is on. I believe he is fighting yeast as well. If you have been on antibiotics for awhile, you could have that too. Do you take probiotics? Let me know how you are doing.
-------------------- 30 Supplements Awaiting new protocol Diagnosed 2nd time 9/08/2011 with positive western blot No co infection Posts: 74 | From Pine Island, NY | Registered: Sep 2010
| IP: Logged |
posted
Hi, sorry to hear that you are still not doing well. Are you taking that stuff for yeast? Linda
Posts: 256 | From Boston, mass | Registered: Jan 2008
| IP: Logged |
sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
The Coartem is probably long out of your system by now. When I took it I had almost immediate relief of symptoms. Unfortunately the relief didn't last, all symptoms returned about 3 days after finishing the course.
Posts: 5237 | From here | Registered: Nov 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Shouldn't you follow up with another drug? I have been thinking about trying it myself but would then re-continue Mepron/ zithro.
I started artesunate last week and it seems to be helping. I was feeling bad for several days but the last two days have been great - feel normal, if you can believe that!
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
Hubby did 8 rounds of 3 days on this med. For him it did not do much of anything at all -- either positive or negative.
If you are having babesia symptoms now, then in my opinion the med brought the babesia out of hiding and the only way to get better is to continue treating babesia. But in my opinion, you will need a combo of meds and to continue treating for several months in total.
In simple language babesia symptoms are usually caused by the parasite multiplying or by it being killed off -- symptoms will be pretty much the same but may be more intense during die-off.
In my opinion, if a babesia med is actually working you should initially see a drastic increase in babesia symptoms -- but over time the symptoms should decrease and you should actually start feeling better.
Unfortunately the feeling better part seems to be missing with hubby's current babs treatment.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic