LymeNet Flash: These symptoms remain....

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»	LymeNet Flash » Questions and Discussion » Medical Questions » These symptoms remain....

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Topic: These symptoms remain....

thomasx
LymeNet Contributor
Member # 13431

posted

So after a bit of treatment, I have the
following symptoms still present:

1. A muscle weakness that manifests through shakiness/non-smooth muscle movement. It's almost like a ratchet movement instead of smooth muscle contraction. I feel it in the trapezius(sp?), stomach muscles and leg muscles. It's really body wide, but especially evident in big muscles groups.
2. Slight skin numbness, particularly noticeable in hands.
3. A bit of dizziness/lack of coordination.

Thoughts anyone? What does this point towards? Any treatment ideas?

Thanks. Tom

Posts: 386 | From Southeastern PA | Registered: Oct 2007 | IP: Logged |

jmb
LymeNet Contributor
Member # 18338

posted

With all the I am not a doctor disclaimers assumed, it sounds like you have the neuro lyme. And could benefit from some IV Abx.

--------------------
enjoy the day.

-jmb

Posts: 208 | From Maryland | Registered: Dec 2008 | IP: Logged |

bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

posted

Neuro lyme doesn't need to always be treated with IV. I've gotten to 95% on orals. My Brian MRI is now normal.

Have you treated for Babesia? Seems like lyme / Babesia to me.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3139 | From Massachusetts | Registered: May 2010 | IP: Logged |

thomasx
LymeNet Contributor
Member # 13431

posted

Interesting. Regarding Babesia, I don't think I've ever been explicitly treated. I only had night sweats about four months after tick bite. I've never tested positive for Babs. Still...

Sounds like neuro lyme to me too.

Posts: 386 | From Southeastern PA | Registered: Oct 2007 | IP: Logged |

dian
LymeNet Contributor
Member # 14335

posted

bcb, what oral meds do you think got rid of your neuro lyme?

Posts: 256 | From Boston, mass | Registered: Jan 2008 | IP: Logged |

Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

posted

quote:
Originally posted by thomasx:

2. Slight skin numbness, particularly noticeable in hands.

Thomas,
Are you taking B vitamins?

I think the skin numbness is neuropathy.
My feet were numb for six weeks, and then I started taking a B complex vitamin.

THE NEXT DAY the numbness got better!

Posts: 6956 | From Lancaster, PA | Registered: Feb 2004 | IP: Logged |

thomasx
LymeNet Contributor
Member # 13431

posted

I've taken much B. I've had much improvement in my neuro symptoms, though they're not gone completely.

Posts: 386 | From Southeastern PA | Registered: Oct 2007 | IP: Logged |

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