posted
I started taking Samento and Cumanda, rotating every 12 days. I think I'm having severe herx, but it doesn't seem to stop symptoms after discontinueing the samento/cumanda.
Any ideas how to restart the dosage of samento/cumanda to tolerate? I was at 15 drops, 2 times daily.
Posts: 2 | From Minnesota | Registered: Jun 2009
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
My daughter (26) had a severe herx with Samento and had to stop for 2 weeks and then restart. She's a bit of a rebel and always tries the highest dose first, so she started at 15 drops, which IMO was a big mistake.
Once she started again, she started with 3 drops and has been fine ever since. The latest Cowden information said not to alternate every 12 days. If you do a search in General you will find that it says to stay on without breaks.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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klutzo
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Member # 5701
posted
I was able to get to where Cumanda no longer made me herx after two months, but I took Samento for four years and herxed the whole time until I finally accepted that I could not take more than 5 drops a day, and only in the morning, or it kept me awake all night.
I think we are all different in what we can tolerate. It may depend on whether we have HLA DR4 genes or not. I believe this has to do with the speed at which you can detoxify the potent endotoxins put out by the dying borrelia.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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posted
klutzo - just curious as to what your herx from cumanda felt like. i take cumanda and wondering if i'm herxing from that or from my antibiotics.
thanks!
Posts: 82 | From NJ | Registered: Mar 2011
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Lymeorsomething
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Member # 16359
posted
I'm at about day 77 of the Cowden protocol. Once I worked up to the full dosing, I've been herxing a lot more. Herxes are characterized by increased fatigue, increased twitching, and more recently a day long headache. I'm definitely making something angry.
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
bridge, The Cumanda herx for me was lots of muscle pain with every movement. Like someone put me in a burlap bag and beat me with a baseball bat!
It usually started on the 3rd day after raising the dose, so I had to learn to be patient and not raise the dose too fast.
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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lululymemom
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posted
Yes, lots of muscle pain for my daughter as well..
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Oooo, Cumanda packs a strong herx. I think I got up to 15 drops BID after 10 months. I can't say it did/or did not do anything for me. I quit when I relapsed further.
Posts: 1954 | From Illinois | Registered: Aug 2007
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