posted
One of my most concerning symptoms is that I see trails.
Ex. I wave my hand in front of me and I can see a ghost image of my hand trailing slightly behind it.
Most people see them off fast moving objects of high intense lights on dark backgrounds (Ie. Headlights of a car moving quickly by at night). However, I see them on normal objects in daylight, and at night they are magnified 10x.
I've had my eyes checked out by the best Eye Doc at one of the best Eye Hospitals in the world (Mass Eye and Ear Infirmary) and they are better than 20/20 with no phsyical damage noticeable.
He diagnosed me w/ Palinopsia - which is the presence of an image after the original stimulus has left. Of which there is no known cure or cause other than disease and drug use.
My trails get worse as the days go on. As i get more tired and, whatever it is that's taken over me, gets better hold. They also get significantly worse when i drink (which i dont anymore).
I'm curious to know if anyone else here has had these, has these, or knows of anyone who does. Every Doc i go to (including my current LLMD) has never heard of this as a Lyme symptom and are quick to lump it in as just another symptom of whatever it is they're looking into, in this case, lyme.
I have also dealt with a mold issue in my home which i have attempted to remediate but may still have some work to do, as the weather heats up, my symptoms are becoming worse.
I'm reaching out to see if anyone has had this and if they have seen improvement with treatment of lyme.
(Im currently being treated for Lyme/Bart but have had no response one way or the other so far).
Thank You for your support and insight
Posts: 47 | From NH | Registered: Oct 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I had a variation of what you describe. I would get light patches in my vision. If I was loking at a door, I would see light patches "frame" the door, etc.
They are gone most days now with proper treatment. I see them now only when I am flaring during a herx. I'm 90-95% most days.
Mass Eye and Ear may be a great medical center...but they don't know lyme. There is a better Lyme Literate Opthalmologist in Boston you should check out. I"ll send you a PM>
BTW..in my experience, this isn't an eye issue, but a brain issue.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
I'm not currently on Abx as i'm awaiting my latest CD57 results and word from my LLND about where to go from here (2 unresponsive courses of Abx for 6 months).
I've had this since near the beginning of all my symptoms about 12 years ago. They used to only be visible when extremely tired and/or drunk. Over the years they've become increasingly worse to the point where they're now visible during the day without medication or alcohol.
I realize it's a brain issue but wanted to get the eyes checked out just in case. I just wanted to mention that i went to see an opthomolagist just in case someone suggested it.
Lymetoo - you asked if I was on any of the meds you mentioned, but you didnt mention any that I can see. I'm not on any meds for lyme at this very moment but am taking .25-.5mg of Ativan at night to help with sleep. I've only been doing this for a couple weeks now and only as needed. It hasnt had significant effect on the trails one way or another.
Carol - I trid the search function before posting, but there were only 2 other posts that were returned when i searched for "Palinopsia". One was a single post that was never replied to and another was someone posting a link to the a Polinopsia information page. If you know of any discussions that have taken place in regards to Lyme and Palinopsia that I may have missed in my search, please post the link so that we can all benefit. Thank you
The good news, from what I have been able to discover, is that it should reduce and/or go away if the infection is treated. In my case (presumably) Lyme. But is not a lyme specific symptom (what really is besides the bullseye rash that someone of us dont ever get/remember getting!).
If anyone has any experience with this, I would love to hear from you!
Regards
Posts: 47 | From NH | Registered: Oct 2010
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posted
Just a follow up to those who may have searched this topic. It's now over a year later and my palinopsia continues to be one of my most disturbing symptoms. It continues to get gradually worse.
I'm now treating lyme with herbal protocol and continue to take ativan to sleep. I've not had the symptom get any better (or any other symptoms for that matter) even for a day. A continued, gradual worsening...
i pray for releif. Again, if anyone has had this issue or experiences this currently, please reply or pm me.
Thank you!
Posts: 47 | From NH | Registered: Oct 2010
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I remember reading that palinopsia may be caused by infection/inflammation of particular nerves in the brain. One of the nerves that serves the eyes.
I would consider taking systemic enzymes to reduce inflammation.
This is recommended for inflammation of the inner ear, and it treats the entire body, so I would think it would work on nerves to the eyes. Google for Wobenzym inflammation, although other enzyme blends would work also.
Another idea...and you might think this one is "out there"...would be to use pulsed electromagnetic fields, such as with the SOTA Magnetic Pulser.
This helps to normalize the cells, reduce pain and inflammation. I've used it all over, including toothache, sore throat, sacroiliac joint pain, sore shoulder, sore ankles, abdominal pain, hip joint pain, and hemorrhoids.
p.s. Of course you shouldn't take advice from an unqualified stranger without doing your own research. But I hope this will get you pointed in the right direction.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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posted
Thank you so much for your replies! What would be a recommended anti inflammatory besides Cats Claw?
What is a good anti parasitic herb? I'm going to be adding teaser to my protocol soon. Does that qualify? Thanks so much
Posts: 47 | From NH | Registered: Oct 2010
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Tumeric/curcumin are anti-inflammatory. We had good results with New Chapter brand "Tumeric Force."
Also, New Chapter has come out with an herbal product to specifically treat inflammation - called "Inflammend." Someone here said they were able to give up their arthritis meds when using this.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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