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» LymeNet Flash » Questions and Discussion » Medical Questions » what does everyone think of this?

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Author Topic: what does everyone think of this?
Kevin V-910
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Member # 19624

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http://www.rhodeislandhospital.org/rih/services/infectious/lyme/default.htm

seems they treat chronic lyme and co-infections? would it be worth a shot? i have insurance but cannot really afford to go to an LLMD that doesn't take insurance at the moment.

Posts: 34 | From Boston, MA | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
amk33
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You should call and find out what blood tests/criteria they use to diagnose. What lab they use will say alot as to whether they are lyme literate.
Posts: 418 | From NJ | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
erikjh1972
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good luck but i live in R.I. and i wouldnt bother. there not LLMD's. there ID Dr.'s

the fact that they even mention neurologoists and reum's should tip u off.

--------------------
3 months Doxy
8 months of Tetra
7 months of Biaxin/Plaq.
4 months Doxy/Biaxin/Plaq.
5 months Biaxin/Plaq.
Back on Doxy/Biax/Plaq
On the road to recovery.
Trying to make people Lyme Aware.......

Posts: 289 | From R.I. | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I know of NO hospital that knows how to diagnose and treat Lyme disease.

We may have a name on our list for RI of someone who takes insurance. Have you checked in Seeking a Doctor??

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Kevin V-910
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lymetoo-thanks for the advice. i will avoid.

posted in seeking a doc but haven't heard anything yet.

Posts: 34 | From Boston, MA | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
steve1906
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Hi Kevin, if your ins. will cover this appointment, go for it.

No one here said they ever seen anyone at this hospital, so no one can tell you if they are any good at treating Lyme.

You have nothing to loss!!!

Clinic Hours and Referrals
The clinic is open on Tuesdays from 1 to 5 p.m. Appointments are necessary. All patients must have a primary care provider, as this is a referral-based specialty clinic. All insurances are accepted.

For more information please call 401-444-5280.

Let us know how you make out...

--------------------
Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
steve1906
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Check this out, it sounds to me like this group of doctors really want to try and help us out...

http://www.researchednutritionals.com/information.cfm?ID=185

I'd like you to keep me updated if you go, I'm also from Boston, MA...

--------------------
Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
erikjh1972
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thats not good either steve1906. and yes i have seen Dr.s that were assiociated with the women who headed the Lyme clinic 3 years ago.......he was an ID Dr. who helped me get to the state i was to become before getting proper treatment.

do research on the Dr.s mentioned in the south county hospital and you tell me if you'de want to see them for chronic lyme.

--------------------
3 months Doxy
8 months of Tetra
7 months of Biaxin/Plaq.
4 months Doxy/Biaxin/Plaq.
5 months Biaxin/Plaq.
Back on Doxy/Biax/Plaq
On the road to recovery.
Trying to make people Lyme Aware.......

Posts: 289 | From R.I. | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
erikjh1972
LymeNet Contributor
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http://www.pbn.com/stories/42828.html

here's an interview with the head of South County.....i wouldnt go, but u be the judge.


take special note where he says long term anti-biotics are not recomended for late stage lyme.

--------------------
3 months Doxy
8 months of Tetra
7 months of Biaxin/Plaq.
4 months Doxy/Biaxin/Plaq.
5 months Biaxin/Plaq.
Back on Doxy/Biax/Plaq
On the road to recovery.
Trying to make people Lyme Aware.......

Posts: 289 | From R.I. | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
steve1906
Frequent Contributor (1K+ posts)
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The reason I think KEVIN should go is because he can�t afford an LLMD right now.

I don�t disagree with all that�s being said about this hospital, and the doctors that work there.

I still think Kevin should take advantage of his ins. and give it a short. If Kevin doesn�t agree with
there treatment plan, *if any* - he only loses some lost gas money with the trip to RI.

Kevin, if you do go, make a day trip out of it. I don�t know if you have kids or not but, RI has a very nice Zoo
(Roger Williams Park Zoo).

--------------------
Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Nancy2
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Stay away! They subscribe to the ISDA way of thinking, and you do not want anything on your medical records that could influence how your insurance company will treat you down the line.

Nancy

Posts: 1487 | From New England | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Rumigirl
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Nancy is right. Your insurance company would just love to have an excuse to cover nothing for Lyme, because you don't have it according to this hospital, going by IDSA view. It will hurt you. And also make you crazy. They live in some alternate universe that doesn't exist (hospitals and drs who go by IDSA rules).
Posts: 3771 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
   

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