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» LymeNet Flash » Questions and Discussion » Medical Questions » I think i DEFINELTLY have BART.. Tell me if im right plz...

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Author Topic: I think i DEFINELTLY have BART.. Tell me if im right plz...
Nicole2011
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So after finishing a 30 day treatment of iv rocephin on may 13th. i started zith today at 3pm & started herxing within 30min...

I feel soo out of it, feet/ ankles are killin me, starting to have that echoing when i talk again, ears ringing real loud, hands are killing me, bad headaches...

Now i know the feet pain are popular bart symptos.. Does it sound like the zith is hitting bart right now?? & maybe my neuro lyme at the same time?

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Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Marine6624
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Have you taken zith b4 today ?
Posts: 198 | From Rhode Island | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
Nicole2011
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yes i was on it before. about 2 months ago for a month combined with doxy

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Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Marine6624
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No reaction then ?
Posts: 198 | From Rhode Island | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
Nicole2011
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no just herxing

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Lymeorsomething
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Zith is not enough for Bart typically...

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"Whatever can go wrong will go wrong."

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lyme in Putnam
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Zith knocked out my Bart but it was Iv zith

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He took u to it, He'll you through

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Marine6624
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Lyme , what do you think should be taken with Zith for Bart ?
Posts: 198 | From Rhode Island | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
Nicole2011
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i know its not enough i just was sayiing i think its hitting it

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
sandim
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Nicole are you happy with this new doctor?
Posts: 144 | From Pennsylvania | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Nicole2011
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i havent changed Dr's as yet

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
sandim
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Aren't u seeing the guy in chester county?
Posts: 144 | From Pennsylvania | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Nicole2011
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u can PM me

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
annier1071
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I had same reaction to zithro....I lasted two months and it was not a herx just the abx cause it never stopped. The ear issues are huge and you have ot be so careful with zitrho since it can permanently damage the balance areaa and hearing.

I was take off of it due to this reason. They gave me rifampin for bartonella and that was a herx...so severe that my body was out of control. EVery nerve went wild but it took abaout three days before it started happening. My LLMD stopped the rifampin after 2 pills but the herx continued for 3 weeks, the worst was the third to seventh day where I could barely breathe and tembled head to toe. It also did not allow even one hour of sleep..total sleep disruption. I was on omnicef with both at the saem time.

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Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin.

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Nicole2011
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annier1071- oh wow.. what reaction did u have other then ears ringing?

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
nefferdun
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The foot pain sounds like bart but the ear stuff sounds like a reaction to zithro. Macrolides are used with Rifampin to fight bart. I don't know how effective they would be alone.

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old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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Nicole2011
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yeah the ringin definetly increased with zith

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
annier1071
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Nicole

The tinnitus was bad with zithro, at night I was going crazy from the noise.

I had bad muscle pain in my thighs and knee finger pain after takign it. I seemed to hurt everywhere. I took if for two months not realizing I shoudl stop it due to my hearing.

At my next visit I mentioned the ringning and fading hearing, or weird hearing things. I could not stand my own voice in my head!! He stopped it right away in fear of permanent hearing loss and vertigo.It is known for hearing problems.

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Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin.

Posts: 788 | From New york..queens | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Nicole2011
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so what are u suppose to take instead?

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
bcb1200
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Biaxin...works well too. I never took Zith.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 95% +/- most days.

Posts: 3134 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
   

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