posted
I had a classic bart rash when I was 16. No one knew what it was, I also had a positive ANA. My parents took me to some many doctors-some thought lupus
25 years later and years of mystery illnesses I crashed in July 08. I have every tick bourne disease possible. I have been through hell and back-one year IV meds, intramuscular shots, orals, accupuncture, herbs.
I have gotten better-I can function at least and take care of my family-had to resign from my teaching job.
My question is -Has anyone gotten over chronic bart? I've used rifampin, oral and iv, avelox, herbs and many other antibiotics. I'm going to try A=Bart. Any magic thing to take or do to make it go away?
I eat a clean diet, exercise when I can, do everything my llmd tells me to do. I think the bart is so entrenched-it's never going to go away. I know when It's back without even going to the doc.
Any thoughts? (I have even ordered some healing music)
AT the end of my rope-want to give up
Posts: 298 | From usa | Registered: Aug 2009
| IP: Logged |
posted
I am sorry you are going through this but are you sure you still have it. Maybe you are in remission. I would try the bart supplement, I hear it is great. I want to try it as well. I have Bart too but I was treated for 5 months with Levaquin and I am done with it. My feet are still killing me but I am done taking any more abx for Bart. As soon as Levaquin came in the picture, I developed Hives, had them for a month and then got systemic yeast. I am still fighting with that and again, I am not going on any more ABX except for minocycline for lyme and scleroderma. I have been to hell and back with this yeast and I am done. I hope you have good luck with the Bart supplement, let me know how it works so I can try it. Supplements are the only drugs I will be taking from now on. Good luck
-------------------- 30 Supplements Awaiting new protocol Diagnosed 2nd time 9/08/2011 with positive western blot No co infection Posts: 74 | From Pine Island, NY | Registered: Sep 2010
| IP: Logged |
posted
All the problems we have are 95 % related to our immune system not functioning well .
So work on cleaning your body and supporting .
If we can make our body to work as it should for a month and simple antibiotic help we will clean all bad bacteria from our body .
But it hapen more with us to create more problems in our body (like yeast with antibiotics,and deficits on our vitamins and nutrition because of long use of antibiotics that destroy normal functioningof our body .
But hey no body has done real miningful research on this desease.
Not LLMD who are busy cashing in on this no time for real research .
But LLMD at least recognise that something is wrong and we need to be treated.
I learned in the hard way that more important is to help body to clean the yeast (that all Lyme patients have even before they start antibiotics)get nutrients that body needs,exercise all this help more then antibiotics.
And then in the end when everything is clear and functioning well kill bad bacteria with antibiotics and herbs( but no antibiotics more then 4 months in the row to protect body system).
To bad that i didn't know that in the bigining of my jurney.
Posts: 482 | From Nebraska | Registered: Feb 2010
| IP: Logged |
Yes, I feel the same way about antibiotics now, I feel like I am through. I am currently off all and doing everything possilbe to cleanse my body. I do inhaled gluthiane, chlrolla, try and exercise,
But the bart bacteria is in my brain. The vise like pain and catatonic state only gets worse when I 'm not on someting. It's a catch 22.
I can't live with antibiotics, can't live without them.
What are you doing for systemic yeast? I take diflucaN twice a day and eat a very clean diet.
I used to be an exercise fiend, but when my head gets like this, I can barely make it to the couch. The dizziness, pain, pressure, and depersonalization is crushing.
Have you treated for parasites? I did two rounds of biltricide (Dr. K actually recommends this) but I think I need more. Many people here talk about humaworm or parastroy- have any thoughts on it?
I belive in getting the body better to be able to fight the infection. I saw a chinese MD naturopath who used herbs and accupuncture, but even he said I was not responding the way most patients do and actally put me on mepron. (I have babs also)
I feel lost, and pretty much at the end of my rope. I have a family and that's the only reason I am still here.
Posts: 298 | From usa | Registered: Aug 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic