BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Every thing I read says Lyme hides from your immune system, changes structure, replicates to look like your own white blood cells. This seems like a never ending battle that is impossible to win. I know some people get better but maybe their circumstances are just right.
I don't know anymore
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
I feel this way too right now. It just seems like even if you get a little better any stress will knock you right back down. And I believe stress is just a part of life especially when you have kids...
Posts: 303 | From green bay, wi | Registered: Mar 2009
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I think even after remission you will need to continue to support immune function as well as any other lingering issues. So, yes, in my opinion you will continue treating forever. Those who slack off after remission will subject themselves to a possible relapse.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i've heard of people being on abx for six and more years.
no way could i do that. sometimes it's just not worth it. my system could never tolerate that.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I hope not!! But I also read many got better... so let's just plan on getting better shall we?
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
For me, no improvement after 2 years of IV abx pretty much says it all...basically, I don't have a chance of getting well without something miraculous happening.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I am losing all hope here. Seems like I just can't win the battle and so tired now.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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