posted
I've had one for years and no one seems to think it is significant. I have had a few brain scans. Pituitary tumors, I am told, are not that unusual. But if I were in your position I would certainly get a second opinion! Never hurts to be sure, does it?
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Thanks farraday, do you have headaches? Did the tumor precede your Lyme?
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
My friend had one removed a while back, and shes talked to about it. They can cause several problems, with hormones and calcium levels. I would get a second opinion just to be sure. I dont think its related to Lyme, sounds pretty unrelated, but I'm no expert. But I would check it out again, doesnt sound like something you want to put off.
Posts: 844 | From CA | Registered: Apr 2010
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
It is not necessarily a lyme thing...benign pituitary tumors just happen...
Just watch hormone levels closely, especially prolactin...
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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posted
I have pituitary tumor also. It is being watched with repeat MRI's. It is fairly "new"...first showed up about 2 years ago. Even though most present no problems...it really is quite scarey knowing you have it "sitting" in there. I am not a fan.
-------------------- Corinne Posts: 529 | From Raleigh, NC | Registered: Jun 2006
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
I had very high prolactin levels, went through menopause like symptoms, my tumor was depressing on my optic nerve therefore my peripheral vision was impaired. I ended up having emergency surgery due to the visual impairment. Since then no problems with vision until my Lyme emerged in July 2010.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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posted
I had high prolactin, they thought I had a pituitary tumor, went through pituitary exploratory surgery, and they found hyperplasia, not a tumor.
They were confused and declared me a medical mystery. We can fool their tests. Like usual.
Since treating for Lyme 5 years now, my prolactin level has dropped from 200 (very high), to 150 to 100, and am wondering what the next test will show. I am treating my brain!
I do oral clindamycin, and anti-inflammatories: mangosteen juice, noni juice and grapeseed extract capsules.
If anything, you could try an experiment, if you're not already taking anti-inflammatory supplements: take some, first getting a prolactin bloodcount, and then every half year or so, see if the level drops. Just an idea.
Posts: 13116 | From San Francisco | Registered: May 2006
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fflutterby
Frequent Contributor (1K+ posts)
Member # 28081
posted
Hmm anti inflammatory, my sed rate was high this past month. I thought we couldnt have juices though.
-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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