posted
I saw a new LLMD today who did some muscle testing (my first time, a little skeptic..) all the antibiotics she tried showed to be very bad to me.
I've seen on here before several people who have gone off ABX and just rely on herbs. And I've thought thats fine if your mildly or medium sick. But always thought it was a bad idea for anyone who was very bad off.
And that is myself. I have almost all the horrible symptoms of Lyme, the very worse being extreme chronic pain (everywhere) 100 on a scale of 1-10. I've been super sick for 4 yrs with ups and downs, recently far more downs. And the pain symptoms just keep getting worse.
With my my most recent setback I had just before been put on minocycline....dont know if my setback was related to the mino or not. But in the past I had responded well to Biccillin shots, though it started to wear off after a bit.
Anyway to get back to the point. This new doc thinks I should stay away from ABX. This scares me since I have had 2 very HUGE setbacks in the past 5 months.
It feels like I should be really doing something big to try and fight this, no?
Please any advice or suggestions would help. Thanks.
Posts: 34 | From NJ | Registered: Mar 2011
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posted
can i ask if you are working or going to school?
-------------------- Listen. That's all we ask. Posts: 172 | From toronto | Registered: Apr 2011
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
So what is your doctor's plan B?
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I believe if you have been on abx for years and not seen much improvement, the abx themselves could be making things worse.
Even those of us who treat with herbs and are not very sick were very ill at one time. However, we didn't rely on abx to do the healing and that made all the difference for some of us.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Have you done anything to facilitate detoxing from the die-off? Toxin build-up due to lymphatic stagnation, hypercoagulation, and other factors that may or may not be related to Lyme/coinfections may be what is keeping you so ill and may be responsible for your recent setbacks.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
Ir...I was just given the same muscle test by my llmd after only 6 months of treatement on one abx and told that I was cured?
He said to keep on the abx just till august and stop. I am still dizzy, muscle and joint pain all over so I cannot understand it either?
I am with you, scared to stop and dont know where to go from here.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
My daughter's integrative doctors tested her and said that my daughter could not tolerate most abxs also...the one abx that she could tolerate was not that beneficial to Lyme and co.
BUT, they took many other factors into consideration, and had a plan of what to do next...they did not just leave her dangling.
She did go onto alternatives...and that is when she took off at a fast pace of reclaiming wellness.
It took time, it was not overnight, but her health progressed more rapidly than anything else she had done in the previous ten years.
She also had testing done through SPECTRACELL Labs as well as a CD57 to see where she was at.
Through energy testing, labs, a keen eye on symptoms, and GF diet, plus detox, things turned the corner for her.
I guess I am trying to tell you, that if indeed you cannot tolerate abxs, there is hope to getting better...BUT your doctor/s need to have a detailed plan on how to achieve that.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
ardraneala - I was an actress and a Nanny before I got sick, before my recent setbacks I was able to work a couple hours a week and do a little acting, but now am just stuck at home again.
Razzle - Im sure your at least in part right. I mostly just did epson baths and lemon water. Never was great at detoxing and have lots of problems with constipation so that doesnt help. My new doc added detox foot pads to the regime...
annier1071 - Yeah, it seems a little weird to rely on muscle testing for such serious answers right? Especially if he is telling you your cured when you still feel sick... I live close to NY, do you go to any lyme groups?
momindeep - Thats a good question. She has me on cats claw and diflucan, both of which she says can treat Lyme, though from my research on here I dont see that they actually treat Lyme. She also added Colostrum and Boluoke. I am not trying the Boluoke right now though because I saw that a number of people have had bad reactions to it... Thats pretty much it. Oh and she sold me a Q-link to wear... It was good to hear that your daughter got better after switching to Natural. Was she extremely ill before that? Normally I would feel okay about trying something new for a little bit, but I had my pain levels jump so much in the past few months and am already on so many pain pills, its just nerve wracking knowing what could be in store for me if this experiment fails...
Timaca - Thanks for the info I will read it now. Last setback my doctor did blood test and found that I did have strep and staph in my system.
lululymemom - What specifcly made the difference for you?
Posts: 34 | From NJ | Registered: Mar 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
It seems something different works for everyone and the key is to find what works best for you. For me it was a combination of lifestyle, vegetarian diet, exercise, and the right supplements. The things I take everyday now are a good multi-vitamin, mag. citrate, CoQ10, and B12.. If I feel I need it I will take Eleuthro (Siberian Ginseng) and RNA (for Brain Fog)
I don't really treat the lyme or the bart anymore but I'm sure the supplements do help.
For me a good brand of Colloidal Silver along wth Teasel was really good but I have been on many different things including A-Bart, Chitosan, Cat's Claw, Serrapeptase, Vitex, Resveratrol, Red Root, Wormwood, and Cumanda.
I know this illness does run it's course somewhat, and when I was at my sickest I didn't take anything and suffered for several years. I didn't know I had Lyme then.
posted
i forget why i asked you that but i think its because i tried hard to manage my symptoms before i realized i was physically ill with exercise and eating right and anytime i got busy with something i'd get worse...eventually i just accepted that i was very ill and quit everything...after two months of caring about nothing but eating right (anti inflammatory foods, spices) and sleep (14 hours a day) and exercise (enough to sweat) I improved before any antibiotics. I completely committed my life to it. i started thinking of my body as a machine, eat as much good foods as i can and exercise to make sure they get absorbed...exercise helps get the guts going too...i love guacamole so i add omega oils, turmeric, ginger, cayenne pepper, onion, garlic, tomatoes and fresh hot pepper. shakes with lots of berries is great too, lots of antioxidants and fibre.
-------------------- Listen. That's all we ask. Posts: 172 | From toronto | Registered: Apr 2011
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>_> well then! I lied, I cut it out a while ago, but I put it in my last batch. I don't really have inflammation anymore but...now I think it might have made me bloated last night..hmm.
-------------------- Listen. That's all we ask. Posts: 172 | From toronto | Registered: Apr 2011
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