posted
I am treating for lyme and babs. I've been gluten free, low sugar.
I am now 103 pounds at nearly 5'8" and am really upset. I have always tended to be thin maintaining my weight with no effort. When I started I was a few pounds under normal for me at 118 then within a couple months weighed 112 then a couple months 108. My dream would be 125 pounds.
I just had a stomach virus and now I'm 103. I had to get new basic clothes to wear and was size 1 and all extra small skirts and tops. No more boobs not even fake cleavage(with VS bras).
So I am thinking of being gluten light(means I eat gluten free mostly but when I run out of food at home I eat whatever is there or at resturants eat some gluten. I eat healthy and would continue. The problem for me with this diet is that I'm too weak to be fully stocked at all times so I don't eat or I eat dinner without extra stuff like bread and get used to eating like this. If I don't know what to eat then I eat nothing this is what the diet is like for me.
So I am doing this gluten free for the inflammation aspect no? Well let me tell you I would rather have the inflamation I had before than to be skin and bone and for it to hurt to lay on a massage table or to bump into a wall or for anyone to touch me!
I HAVE HAD IT! Please can someone support my idea for me? Would this be the end of the world to do what i am thinking? Any weight gain tips? Gaining muscle too?
Posts: 34 | From southern CA | Registered: Dec 2010
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posted
Forgot to mention I avoid dairy but eat goat cheese/milk and kefir. Sometimes eat regular cheese.
Posts: 34 | From southern CA | Registered: Dec 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
you're not thin, girl, you're skinny....
you can have my extra 90 pounds, no kidding.
i think i'd add back in some gluten or something. those ensure shakes or ezekiel bread.
my friend, ann, had to stop the diet because she got so weak and thin. the doc monitored her and she went back on a more normal diet, including bread, pasta, until she gained weight back. she's doing ok, it didn't kill her. and she was also very weak and shaky all the time.
unless you're absolutely positive you can't do gluten, i'd add some back in.
but others i'm sure will have lots of ideas.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Hi Seaweed, I could have wrote that myself!! I am petite so I don't have a lot to start with... but this Lyme diet is making me so weak!! 6 weeks into this and I had a total mental break down two days ago.
I was sick of feeling sick and WEAK (shaking all the time)!! So I took the kids and went the the Outback Steakhouse. I ate bread and butter (OMG nothing tasted better). I got the fried onion rings. Then the combo plate w/ grilled chicken, ribs and shrimp and sweet potatoes. The funny thing is I didn't eat that much either... I took home most of the food b/c I was so used to NOT eating for so long.
But it was soo liberating to order foods and ate what I used to enjoy even if it was just for one night. Lyme and Co have robbed me of soo much already I'm having a hard time letting go of some of my favorite foods. So I have decided, for the most part I will stay compliant... but if I crave a sandwich once a week then guess what I'm going to get that sandwich! There has to be a balance. This is a long battle and my emotional/mental health is equally important! So I support you!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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posted
did you notice a difference in the way you felt when you started gluten-free? if not, I agree. I am not on a gluten-free diet, but I do go low-carb and get plenty to eat, in fact have gained weight. I eat eggs and bacon for breakfast, meat and cheese sandwich for lunch on lettuce leaf instead of bread, nuts and grapefruit for snacks. Meat and veggies and salad for dinner, and sometimes brown rice or sweet potato. So that's pretty gluten-free I guess, now that I write it all down! You are just not eating enough, I think!
Posts: 236 | From Zionsville IN | Registered: Jan 2011
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Some people need more carbs than others - it depends on metabolism level, blood type, and a whole host of other issues. So my suggestion is that you might try adding in some less inflammatory carbs, such as brown rice or sweet potatoes (and/or yams) and see if that helps any first before adding gluten foods back in.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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posted
If you can't tell a difference with being gluten free AND YOU'RE NOT A CELIAC .. then there is no point being gluten free.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I know I'm not a Celiac, but my LLMD said I need to cut out gluten to reduce inflammation. She also said no to all foods that are grown underground such as sweet potatoes. I can't have nuts or peanut butter either. So essentially what was left were only things that I never eaten before and didn't know how to prepare. So when I went cold turkey on all gluten I had a major melt down!!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I think I read somewhere that gluten can feed bacteria and or parasites in the gut.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
Why no sweet potatoes?? What you want to avoid are nightshades .. which includes peanuts, tomatoes, eggplant, white potatoes and spices.
Sweet potatoes are OK if she is referring to the nightshade diet.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I can relate as I've lost a lot of weight as well. I'm 5'3 and currently weighing anywhere from 100-102 lbs. I was down to 96 lbs but have since gained some of that back.
I've been doing the candida diet which is low carb and have inadvertently cut way back on gluten. I don't have problems when I eat it and figured it wasn't going to hurt if I still had some.
I have gained a little bit of weight back. One thing I think that has helped, is that I've been drinking shakes every day to help with calories. They're good for you too! One of the shakes I make is 2 carrots, 1/4-1/2 cucumber peeled with seeds removed, small green apple, almond milk, scoop protein powder with stevia to taste and ice. I mix it all up in my vitamix.
This may not sound appetizing but it really isn't bad! I even got my hubby to start drinking them.
I have also been searching the internet almost daily to try and find new ways to cook. I found one site that I really like! There are some really good recipes on there as well. Check it out and see if anything appeals to you. I actually just made the zucchini muffins and they were delicious!
Recipe tabs are at the top of the site...all gluten free and there are also some good candida recipes as well.
It really is a challenge to eat gluten free or even to go on the candida diet. My entire way of living has changed because of this disease. When I first started searching for foods to eat on the candida diet, I got overwhelmed and started to cry! So I know the frustration!
The way I see it, it is more important for you to get food and nutrients into your system! We're not going to get better if we starve ourselves. Having a strict diet that you cannot follow or that causes you to not eat enough isn't going to help imo. All it is going to do is cause frustration and stress.
No single type of diet is going to be right for everyone. I would just listen to your body. If you notice that symptoms get worse with certain foods, then don't eat that food again. In the meantime, you can search for and try some new recipes. The site I linked to above really does have some good recipes.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
Yea I was trying to do the candida diet for a couple weeks myself. Almost went into a hypoglycemic coma, I woke up one morning a couple weeks into it shaking so bad and dissoriented I could barely walk to the kitchen. Checked my blood sugar and it was like 45 or so, I ve had issues for awhile but that was ridiculous.
Now I m eating a reasonable amount of grains / carbs again and feelin fairly good. Im with philly listen to your body if a diet isnt right it will tell you. If I had kept up with it I m sure theres a chance I couldve died.
Posts: 72 | From chico, ca | Registered: May 2011
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posted
I was losing weight until my doc put me on a medical grade food drink and I discovered Chipotle Grill. I go through so many tortilla chips I now make them myself at home to save money. And weight is now stable, but still gluten and dairy free.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Your body knows what you need to eat - not anyone else. Just listen to your body and what you would like to eat. Inflammation is not from gluten, can be many other things.
This diet tips change from year to year.
Posts: 1834 | From US | Registered: Oct 2008
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
You should be able to eat other nuts besides peanuts. My daughter is GF and she eats lots of raw almonds.
She has a nut allergy, so it's the only one she can eat, but you could have all kinds of nuts.
Avacados are great for some good fats. They are high in calories too.
GF doesn't mean carb free. You need lots of vegetables, brown rice, wild rice, quinoa. There are so many grains that are GF.
It won't do a bit of good to eat gluten some of the time. If your pain levels decrease on the GF diet, then you have to be TOTALLY GF.
My daughter can't have even one bite of gluten. It just makes her feel too bad.
If you have been GF for a month or so, and you add gluten back in to your diet, you will very quickly find out if the diet has been helping you.
If you don't notice a difference in how you feel, I wouldn't fool with it. It's too hard if it's not helping. That's just my opinion.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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