philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I was just diagnosed with lyme in April and started abx on April 7th. My symptoms were never really debilitating and I was able to just suck it up and go about my life for the most part.
My biggest problem prior to the abx was trouble swallowing and speaking and fatigue and weight loss. I had other symptoms but overall I would have given them a 5 out of 10 on a scale of 1-10 in terms of how bad I felt or how much of a hindrance they were.
I actually felt a bit better after starting abx and supplements. I had more energy and could think clearer. My problems with swallowing have also become a minor occurrence.
Well, yesterday I was at work and felt okay until about 4pm. All of a sudden I had extreme fatigue and it would take everything in me to just stand up. I kept getting this overwhelming need to have to sit down. My body felt like jello. I had sharp, shooting pains in my back and chest...dizzy and couldn't really walk. I felt off balance. I just felt like crap!
This is new for me and I actually felt worse than I ever have in the past! I'm still feeling very tired today too. I just don't have the energy to get up out of bed. I think I'm just gonna lay here all day.
Is this normal? To feel so much worse than before I even started abx? I've had no change in meds or supps. I was actually going to start GSE today but am thinking I will hold off.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Sounds like a herx to me. The only way out is through. Keep doing what you are doing!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Yes, it does sound like a possible herx. I agree, hold off on the GSE until things calm down.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
Interesting. I was thinking it may be a herx but wasn't sure. I wonder why it took so long? I've been on abx for 2 months.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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posted
It could be a herx, it could also be a heart issue. You should probably have it checked out to be sure.
Posts: 984 | From San Diego | Registered: Nov 2006
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I don't have heart issues. I had a full workup at the cardiologists office prior to lyme diagnosis because of chest pain, dizziness and palpitations. I also did an EKG and checked my vitals when I developed the pain. All were fine and the pain was also reproducible. Makes me think muscular. And the chest pain wasn't there today.
Thanks though!
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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