Topic: Did Malarone or Mepron get rid of your B. duncani?
RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Please respond if you are rid of this.
What dosage did you take and how long?
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Good question. I guess no one on here has gotten well from either.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I don't think anyone ever beats Duncani which depresses the hell out of me.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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nefferdun
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Member # 20157
posted
Me too!
I have taken six months of mepron/zithro/artesunate and have just started malarone/zithro/artesunate. I am at ground zero today.
I hope someone has been cured and responds with better news.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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beths
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Member # 18864
posted
I have heard of several-it seems you have to treat it for a long time, and with high enough doses-2 tsp 2x/day mepron or 2-3 malarone 2x/day.
How much malarone are you taking/
Posts: 1276 | From maryland | Registered: Jan 2009
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posted
I wonder... if it takes years to treat, or even 6 months to a year and no results are seen, how do people even know they are treating Duncani?
My doctor sort of thinks that after several months of Mepron, some results should be seen, or it probably isn't Babesia. Or even if it is, further Mepron/Malarone won't make a difference (and to go after other co-infections instead).
I'm not saying this is true for all cases, but just wondering after what point most LLMD doctors would say it isn't in fact Babesia?
Posts: 584 | From NY | Registered: Feb 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
ss, 4-6 teaspoons is a lot! Just taking two teaspoons a day cost me a fortune - over $50 a day. Taking 4 teaspoons for 9 months would cost me over $28,000!!! There must be another way.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
SS didn't say that she had Duncani, so maybe she didn't have that particular strain, which is much harder to clear than all the others.
Posts: 134 | Registered: Feb 2005
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
up
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Since that post I have made a lot of progress which I have been warned several times could be short lived. I am on the third day of Coartem. I feel great. i will go back on Malarone tomorrow and then do another round of Coartem in 3-4 weeks. Hope it works.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Glad to hear it Neff. You are probably the first person I've heard of who has benefitted from Coartem. You have Duncani, correct?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I have Duncani. Coartem provided no lasting positive effects in any way.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Yes, I have Duncani. This is the day after and I took Malarone this morning. Already experiencing a bit of whooziness and fatigue. I don't know if it is a Malarone side effect or what - but the old plane is starting to sputter and it is looking a long way down to earth.
Do you know the cartoon where the coyote runs off the cliff, stands in mid air for a few seconds, looks down, gasps - and then falls, crashing in a heap at the bottom. . . . ?
That is me with this disease. Ever pursuing the cure, eternally optimistic, then crashing. It is a pendulum swinging from hope to despair. Coartem was the best three days I have had in a LONG time. Still not bad today -
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I have killed off babesia using a- bab,I am still taking it but have not had any symptoms for a while. 30 drops 2 x a day.
Posts: 342 | From northern california | Registered: Dec 2010
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posted
Norcal: I am at 15 drops twice a day... I am guessing you titrated up until you reached 30 twice a day? Maybe this is something I can talk to my doc about. Thanks!
Posts: 859 | From Southeast | Registered: Mar 2011
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