posted
Second week on the doxy and I'm feeling quite a bit better, but I wanted to follow up on my acute Lyme treatment. Getting in with any LLMD in the near future has proven to be an impossibility. Even the distant ones I called have a 12-month waiting list. Last thing I want is for this to become entrenched in my system and have to start treating disseminated Lyme a year from now.
I tried to get an appointment to see my primary but he is away for the week. I went in to see his PA and what a pleasant surprise. She is bright, attentive, caring, and she doesn't take a casual view on Lyme at all. In fact, she said she's been studying up on it for years since she's the one that sees all of the tick bites. She agrees that it can become a very serious and debilitating disease if left untreated. She highly recommended that I finish the last week of the doxy even though the Lyme titer came back negative. She wants to test me (Western blot this time) a month after I stop taking the doxy and see what the results come back as.
When I told her that I was seen at urgent care two years ago with a deer tick imbedded deep into the skin on my thigh (but no rash presented), she asked if they gave me a prophylactic dose of doxy. She seemed aghast when I told her they hadn't. However, she seems confident that the very sensitive ELISA test I just had (94-96% sensitivity) would have shown antibodies now if I had been infected way back then.
Any thoughts?
Posts: 50 | From Saratoga Springs, NY | Registered: Jun 2011
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lymeboy
Unregistered
posted
There is a very good post somewhere here about why the Elisa is not a good test. Someone even made some diagrams, if my lyme choked memory serves me correctly. I would go for a Western Blot, and if you have any symptoms at all and are still testing negative, pay for a test through Igenex.
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posted
unless it is a new test that none of us has heard of, the elisa is not sensitive and does not have that percentage of accuracy. Tho this is what the current mainstream medical literature says, it is wrong. Truly. so if you've found an interested in learning PA, perhaps you can offer some education on that.
Posts: 236 | From Zionsville IN | Registered: Jan 2011
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