posted
I just thought I would share my CCSVI ultrasound results. I know a few others were interested in this new idea behind unresolved Neuro Lyme symptoms and it's relation to CCSVI.
As I suspected I was clear cut positive and now trying to find the money to get treated and hopefully feel better.
I will share just a part of my results so I can give you an idea of what is happening to us Lyme patients and our jugular veins..This wasen't just me tested...Every Nuero lyme patient tested has been positive...
Doctor's impression: 1.) Reflux in the internal jugular vein is identified bilaterally. 2.)Abnormal valves and abnormal narrowing identified within the caudal aspect of the internal jugular vein bilaterally. 3.)No flow was detected in the right jugular vein in the supine position. 4.)3/5 criteria for chronic cerebrospinal venous insufciency is satisfied with this examination. The patient may benifit from venography and possible percutaneous intervention.
Posts: 56 | From California | Registered: Mar 2010
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Lauralyme
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Member # 15021
posted
Interesting
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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NanaDubo
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Check out atlas orthogonal. Sometimes if the head isn't being held up correctly by the atlas - over time these veins can collapse or be squeezed off. Head injuries, whiplash - all can contribute to this.
I would want to check this out first if I were considering surgery.
Posts: 1129 | From Maine | Registered: Feb 2008
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MichaelTampa
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Hopefully you've made some good progress in getting better by this test and pursuing treatment. Sure looks like this is an important factor for many of us.
Have you been (or will you be) doing anything to address biofilm or otherwise thin the blood prior to treatment?
I hope to get an Rx today for the testing, so I may be soon behind you. Definitely eager to hear any and all news on the topic of what others are doing.
In the meantime, I have been taking serrapeptase and cistus tea (and a few other things) to thin the blood. I was on a very low-fat diet for 6 weeks, and just week my body through energy testing asked for me to stop that diet (permanently or temporarily, I do not know, we'll see). That, and NCR treatment (neurocranial restructuring) has improved my main neuro symptoms quite substantially, so I am holding out hope that this will have improved CCSVI, but who knows...
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
MicahelTampa- I'm going to ask my LLMD what they think I what I should do about those issues. Nothing scientifically has provided answers yet as to why some are restonsing and others aren't. I think we have some good clues and I have the same guess as you, but who really knows...
I guess I just want to be treated to see if it even works or not...Expensive experiment to say the least.
But I think your right in doing all you are in trying to prepare and avoid it. I might have to start these tea's or something myself here...
Posts: 56 | From California | Registered: Mar 2010
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
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Excited today, got the script and one test scheduled next Friday, following test the following week.
The doc who gave the script, was interested to hear all about it CCSVI and NCR and all this stuff, but as he said, he thinks he's learning more during our visits from me than I am learning from him. I guess this is what comes from going early on the news, it's up to us to find our way through.
Posts: 1927 | From se usa | Registered: Mar 2010
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Inner ear alters brain blood flow Minute organs hidden deep within the ear appear to directly alter blood flow to the brain, scientists have revealed. Until now, experts thought the inner ear's job was to control balance alone. But the Harvard Medical School team, working with Nasa, found the balance organs also affect brain blood flow in their study involving 24 people. They told BMC Neuroscience journal that the connection probably evolved to enable man to stand upright and still get enough blood up to the brain. The organs of balance are deep within the ear, inside a maze of bony chambers. Off kilter Two sacs, called the utricle and saccule, make up the inner ear's vestibule and three fluid-filled loops, known as the semi-circular canals, detect the rotation and tilting movements of the head. Dr Jorge Serrador and his team from Harvard Medical School asked 24 healthy people to undergo a range of tests normally used on astronauts. These included a tilt test where the individual sits strapped to a chair that is then tilted to different angles, plus a ride inside a giant, spinning centrifuge. � Standing up places the head above the heart and thus makes it harder to provide blood flow to the brain � Dr Jorge Serrador In this way, the researchers were able to stimulate the different parts of the balance organs and monitor the effects on blood flow around the body. This revealed that the utricle and saccule, also known as the otoliths, directly affected brain blood flow regulation, independent of other factors, such as blood pressure. Dr Serrador explained why the connection may exist: "Standing up places the head above the heart and thus makes it harder to provide blood flow to the brain. "Having a connection between the otoliths, which tell us that we are standing, and the cerebrovasculature may be part of the adaption that allows us to maintain our brain blood flow when upright. "The knowledge gained from this study might lead to new treatment options for these conditions."
Age link
For example, some people who suffer from faints and dizzy spells when they stand up quickly, known as postural hypotension, could have poor brain blood flow linked to underlying inner ear problems, he said. Ear, nose and throat expert Andrew McCombe, of ENT UK, said the balance organs may be one of the many reflexes that ensures our blood is sent to where it is needed. "It makes sense that any organ that tells you that you are standing upright and not lying down will do this. "And we know that as we age the whole inner ear does not work so well, so this may be involved in postural hypotension." But he said it was only a small part of the equation, alongside the heart and blood vessels. Story from BBC NEWS: http://news.bbc.co.uk/go/pr/fr/-/2/hi/health/8268336.stm Published: 2009/12/27 00:00:06 GMT
Posts: 789 | From CT, | Registered: Jun 2006
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Dr.J. OF S.C. 'The sore throat that is not a sore throat' � What is Carotidynia? Frequently our patients describe sore throats as part of their recurring symptom complex. Often, when specifically asked, the patients note that ear pain accompanies the throat pain, but the patients often state that their primary physician can find no reason for their discomfort. In fact, on examination, there is no sign of inflammation of the throat or ear.
The condition 'carotidynia' is little known but is, in fact, common. On careful examination, one can easily detect swelling and pain at the carotid bulb, which is located just lateral to the top of the thyroid cartilage (Adam's Apple) and is the location at which the internal and external carotid arteries separate, or bifurcate.
Our theory is that this is yet another sign of inflammatory neurological disease associated with LBC, since the carotid bulb is known to be a baroreceptor, which means it plays a prominent role in monitoring blood pressure. As such, it is loaded with nerve fibers, some of which mediate pain. Since the fibers at the bulb lie in proximity to the throat and may radiate to the ear area, our patients complain of 'sore throat and earache', when in fact the throat and ear pain arise from an inflamed carotid bulb. The mediation of this pain is most likely from the Nerve of Hering, a branch of the 9th cranial nerve (glossopharyngeal nerve), and/or a branch of the superior cervical sympathetic chain.
Posts: 789 | From CT, | Registered: Jun 2006
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