posted
Its making me feel 50% better (more energy) and vitality- then I have felt in 6 or 7 years.
Diagnosed with Lyme and babs in 08. Babs treatment worked a bit been fatigued for many years. Now feeling very good of simply amoxicillin.
QUESTION: How long can on stay on this? I'd like to take it for around 6 months and if I feel better ween off and pray my body has got this in check. J
Posts: 268 | From new york city | Registered: May 2008
| IP: Logged |
beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Did you ever treat lyme?
You need a cyst buster as well.
Posts: 1276 | From maryland | Registered: Jan 2009
| IP: Logged |
posted
No I have not treated it before. Why must I take a cyst buster now, I feel very good. Why create a herx when I am so ill and it will make me backslide. Can't I wait on the cyst busters?
And lastly what wrong with 2,000mgs a day if it makes me feel very good? Shouldn't we listen to our bodies. From all that I have read on lyme there really seem to be no strict rules on treating it, a great many patients have been put into remission in through many different ways. I have heard of many lyme patients who have gotten well on mono-therapy, not all but quite a few. Might some immune systems be able to take over from a long term mono-therapy? j
Posts: 268 | From new york city | Registered: May 2008
| IP: Logged |
seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Oddly, I've read of very, very, very few who ever got better on monotherapy. I'm glad you're feeling better now though.
quote:Originally posted by jl123: No I have not treated it before. Why must I take a cyst buster now, I feel very good. Why create a herx when I am so ill and it will make me backslide. Can't I wait on the cyst busters?
And lastly what wrong with 2,000mgs a day if it makes me feel very good? Shouldn't we listen to our bodies. From all that I have read on lyme there really seem to be no strict rules on treating it, a great many patients have been put into remission in through many different ways. I have heard of many lyme patients who have gotten well on mono-therapy, not all but quite a few. Might some immune systems be able to take over from a long term mono-therapy? j
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
| IP: Logged |
posted
It might be a good idea to take a cystbuster a few days a week just to "keep up with" the cysts being formed daily.
Otherwise, you can get way behind.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I had lousy lyme treatment for 2 years. It was amoxicillin 4.5 grams per day with probinecid. (The probinecid just keeps the amoxi in the bloodstream longer.)
Here was my result after 2 years of treatment: I felt about 75% normal, but any time I tried to stop the amoxi, within 2 weeks I was a total basket case--as sick as I ever was physically, in bed and also a mental wreck (something new).
That's why I consider that 2 years a total waste.
Then, I switched to a Burrascano type doctor. When I told him about the amoxi treatment, he said to me, "Congratulations, you have succeeded in turning all of your lyme into the cyst form."
So, this is how he got rid of my lyme in 2 months:
He had me stop the amoxi for one week (to get the lyme to come out of the cyst form). Then, he had me take amoxi and flagyl. Together, they hit lyme in both the spirochete and cyst form. The lyme had no way to evade the antibiotics now. This time, it was killed.
I had my first herx (for a week) and then just got better and better.
That's how I got rid of lyme disease. In April, it was 6 years since I completed my treatment and I am still symptom free, enjoying my life.
On amoxi, some lyme is killed and the rest just converts into the cyst form. It stays in that form awaiting the day you stop the amoxi. Then, it comes out of the cysts and continues to destroy your body.
After my lyme doc got rid of the lyme, he moved on to treat my coinfections--bart and babs.
That's what it took for me to get off of the antibiotics merry-go-round.
If you stay on the amoxi, you are just treading water basically. You aren't getting anywhere. You will improve to a certain point and then plateau. The lyme will just wait you out. It has not gone away; it has not been killed.
From pages 12-13 of Burrascano:
"It has been recognized that B. burgdorferi can exist in at least two, and possibly three different morphologic forms: spirochete, spheroplast (or l-form), and the recently discovered cystic form (presently, there is controversy whether the cyst is different from the l-form).
L-forms and cystic forms do not contain cell walls, and thus beta lactam antibiotics will not affect them. Spheroplasts seem to be susceptible to tetracyclines and the advanced erythromycin derivatives. Apparently, Bb can shift among the three forms during the course of the infection. Because of this, it may be necessary to cycle different classes of antibiotics and/or prescribe a combination of dissimilar agents.
4. CYSTIC FORM- When present in a hostile environment, such as .... serum [blood] with certain antibiotics added, Bb can change from the spiral form (�spirochete�) into a cyst form. This cyst seems to be able to remain dormant, but when placed into an environment more favorable to its growth, Bb can revert into the spirochete form.
The antibiotics commonly used for Lyme do not kill the cystic form of Bb. However, there is laboratory evidence that metronidazole and tinidazole will disrupt it. Therefore, the chronically infected patient who has resistant disease may need to have metronidazole (or tinidazole) added to the regimen."
This is why we doubt that you can get rid of lyme on just amoxi. Lyme knows how to evade amoxi quite nicely.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
posted
Ironically enough I've been to a doctor on LI who specializes in lyme for over 30 years- a doc who has known the famous dr. B for many years- though i'm sure they are far from friends now.
He tells me that over the years he had seen tens of Dr. B patients who had failed with the cyst busters and were literally unable to be helped by Dr B or anyone- they are patients who actually became far worse than they when they started treatment and no one had any sort of idea what to do. Now of course maybe this is rare, and I'm sure that a man of Dr. B's record and accomplishments would never admit to many failures, (has Dr. B ever talked in detail about all the patients he was not able to help or who got worse on treatment? I know of no such writings/speeches) but we all have to be honest that for some sub-set of the lyme population the cyst busters don't help. At least let us be that honest. But yes I do agree many may need them and have to hope they are in the 70-80% of the population that CAN handle them. This is a very very serious and deadly business, lyme. j
Posts: 268 | From new york city | Registered: May 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
Printer-friendly view of this topic