posted
Hi, all. It's been a long times since I've posted. I tested positive for lyme last year and haven't had much success on Doxy or Flagyl. Symptoms are still mild, but come and go.
I've tested positive for strep twice and had my erythema rash/joint pain over 12 years ago, after a bout with strep. I've never since gotten strep throat, but am still testing positive.
LLMD thinks if I deal with the strept, I may have more success treating the lyme after. So, I'm looking to have my tonsils removed, which is where he says strept it most likely to hang out.
I'm also going to try Ceftin now as an antibiotic for the lyme, he says could also address the strept. Thoughts?
Posts: 42 | From St. Louis, MO | Registered: Aug 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
It sounds very extreme to me, but Dr K in Seattle seems to love this approach too. It's a VERY painful surgery as an adult I've been told.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Try the ceftin first or other antibiotics that are good for strep.
I had extremely high levels of strep that we were battling for a while. My LLMD also suggested removing my tonsils but I declined.
After putting me on Ceftin my strep levels finally came down into normal ranges. We just stopped the ceftin a few months ago but I noticed that my strep level is slowly rising again so I think I may need to go back on the Ceftin.
I imagine that I will continue to need the Ceftin until we get some of these other infections under control. Once we do that my immune system should hopefully be able to keep the strep under control on its own.
So I would try the Ceftin first. I think surgery should be the last resort.
Anyhow...just my two cents.
-------------------- Sick since 10/2001. Tested CDC positive for Lyme 10/2008 through Quest and Igenex. Started treatment 1/2009 with LLMD. Lyme, Erichilosis, Chlamydophila Pneumoniae, Q Fever, Strep Syndrome and probably a few others I am forgetting. Posts: 451 | From Virginia | Registered: Feb 2009
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Wonder if the strep is hanging out somewhere else in the body and not the tonsils? Ears, sinus area, neck glands, lymph glands?
Removed tonsils might not remove the strep.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
Don't use the toilet if it is already plugged up! has been Dr. K.'s opinion going back many years. He still feels that way.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
My daughter is on Ceftin for high strep titers. Ceftin treats both lyme and strep, so definitely try this for a while and then decide.
Though I'd be inclined not to do something so painful and also inviting other problems with any surgery.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Is this like systemic strep? I had systemic strep and I don't have my tonsils. Just saying, the strep can be there even without the tonsils.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
yes - Strep can be anywhere in the body. Seems extreme to me also.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
My daughter has lyme and PANDAS....which is an autoimmune disease usually associated with strep. We've crossed the BBB and are seriously affected there....OCD, ODD, aggression, rages, etc, etc. She's been on psych drugs for the past 2 years.
High strep titers. Our doc also rec. removing her tonsils. I'm considering it. She's 9, so i'd rather do it now than later. Obviously, strep is in her brain (and I'm sure other places). And while I know that, I feel like maybe I should eliminate this needless part of her anatomy that may keep it hanging about more than it would be without them.
She's just started Ceftin and another antibiotic. Will be interested to see if this helps her. So far, not much change.
On a side note, our doc says there is such a thing as ANDAS, which is autoimmune disease related to strep in adults.
posted
My daughter has lyme and PANDAS....which is an autoimmune disease usually associated with strep. We've crossed the BBB and are seriously affected there....OCD, ODD, aggression, rages, etc, etc. She's been on psych drugs for the past 2 years.
High strep titers. Our doc also rec. removing her tonsils. I'm considering it. She's 9, so i'd rather do it now than later. Obviously, strep is in her brain (and I'm sure other places). And while I know that, I feel like maybe I should eliminate this needless part of her anatomy that may keep it hanging about more than it would be without them.
She's just started Ceftin and another antibiotic. Will be interested to see if this helps her. So far, not much change.
On a side note, our doc says there is such a thing as ANDAS, which is autoimmune disease related to strep in adults.
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
In May at his conference, Dr. K. mentioned the kryo can be a very good idea for children (freeze off to let it regrow), but thought for adults it would not be necessary. He mentioned use of homeopathics "pleo not", "pleo san pseu", and "pleo sancom", made by Sanum should work. He might have also thought adults would need to do auto-urine spray in nose to fix up tonsils. (I know he recommended that therapy as well, but don't remember if he suggested it for tonsils or not.)
Posts: 1927 | From se usa | Registered: Mar 2010
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Dr. K. recommends kryo for most patients, adults and children, even the ones who had tonsils removed years ago. If this is not satisfactory, because it may not be for all because of continued toxic levels, he still recommends to have the tonsils removed. It is a major hindernis when the tonsils no longer perform their function and toxins back up.
For some people, as I do, I use a small green laser with a tonsil detox vial specifically prepared for use with biophotons. In certain people and conditions, it works great. When my voice changes, out comes the green laser. I use it for any sprain, cut, injury for quick healing. It can be used with or without nosode.
Any biophotons will mobilize toxic metals and other environmental toxins - so it is wise to be prepared with other agents to help the toxins out through gut, etc. to avoid recirculation and reabsorption. A never ending merry-go-round if you don't watch out.
Tonsils can also be treated very successfully (and should be) with Neural Therapy (I had this often done by Dr. K.) and it takes no longer than a couple of minutes.
Ignoring toxic tonsils is not a good idea - ANY TOXINS NEED TO BE DRAINED ONGOING. If you don't feel good, chances are cause of overflowing toxins - not a herx.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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posted
tu4two-my dd9 also has PANDAS and Lyme. Her titers have hovered in the 500's for the last two years. She had her tonsils and adnoids removed last week. Her Doc thought the strep might be hanging out in biofilm form in her tonsils.
I hope we got and it is not somewhere else.
Posts: 131 | From Nebraska | Registered: Apr 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i had a friend who had his tonsils removed as a result of infection as an adult.
he almost died. course not everyone will have the same reaction but afterwards the doctors told him that it is extremely serious for an adult to have this operation.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Wow. Thanks, everyone. So much good info here. Hadn't thought about homeopathy for this and FOR SURE not thought of a green laser!! That just sounds cool.
Randibear and tu4two, I'm so sorry about your children. I do believe I went through this after my bout with the strep infection/lyme disease (unknown which it was), but tried to commit suicide shortly after....it all makes sense to me either way. It's such suffering and I can't imagine watching my child go through it.
Curious...anyone with high strep ever have a flareup, (separate from what you thought was lyme)...a flare-up with Erythema Nodosum? (Swelling of lower truncular region, difficulty walking, redness, aching, pain)?
Will think more about the treatment. Asked the LLMD about whether or not this would necessarily get to the strep, since it could be anywhere. He spouted off percentages, so....I assume, "no", then. Posts: 42 | From St. Louis, MO | Registered: Aug 2010
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posted
Sounds unnecessary to me. If testing high for strep without an active infection of the throat, who is to say its in the tonsils!
Posts: 60 | From MO | Registered: Jul 2010
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posted
My sons have always had very high strep numbers on the DNASE-AB and ASO tests.
They had their tonsils removed 14 months ago. They were tested again last week and they are finally in the nornal range. We know they had the high strep numbers for at least 10 years.
Our LLMD said they were his first patients to have their tonsils removed because of chronic strep. I'm curious about other patients that have had their tonsils removed.
They had the surgery the same day. It's a painful recovery. They are really tough kids/adults. One of them had spinal fusion surgery last fall because of scoliosis and that made the tonsil surgery look like a piece of cake.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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posted
I had tonsil surgery November 2009 as an adult.I had recurrent tonsil stones and also thought it could be a place for lurking bacteria.The operation was fine, but the recovery painful. I ended up having a small bleed from my throat a week after the operation and was readmitted for iv antibiotics. After the iv antibiotics I made a full recovery.
Posts: 174 | From UK | Registered: Oct 2009
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I just know that 20 years ago, I went to my ENT for my scheduled appt only to find the office deserted.
The nurse told me the doc had been called back to the hospital because an adult who had had their tonsils taken out the day before had begun to bleed, so she was told to send all the patients home.
The doc finally came back to the office and he was a total wreck. He could not even concentrate on my case. He told me the man almost bled to death. He could not get the bleeding to stop.
I thought this was the danger of an adult getting their tonsils taken out. If you go to a doctor to inquire about this surgery, I would make sure I discussed this possibility with the doctor. Seems to me my doctor said the bleeding can happen at any time.
In the post above, tsf had a bleed a week after surgery. That's what I'm talking about.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
One of my sons started bleeding about a week after the surgery. He had to have a 2nd surgery to have a stitch put in. I think it happens in 1 out of 100 patients. I know it would be us.
His doctor said to have popsicles on hand in case of bleeding. He held popsicles on the spot until we got to the ER.
We have been through so many things in the last 10 years that it wasn't the worst thing that has happened.
-------------------- Peggy
~ ~ Hope is a powerful medicine. ~ ~ Posts: 2775 | From MN | Registered: Apr 2001
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