posted
Just wondering. Have heard much about this Dr. here in town that does some wonderful things that, in my view would help with Lyme disease, but he states clearly that he is not an advocate for Chronic Lyme, but believes it's over-diagnosed and a "fad diagnosis". GRrrr!! BUT - he does believe many people suffer from a "lyme-like" illness and has many treatments to relieve symptoms.
Would you go to him? I'll try to figure out how to post a link to his articles.
- Don't know if I really, really *like* my LLMD. Sometimes get some pretty vague answers.
- I'm battling Lyme, strep, yeast and mycoplasma as well as low hormones, hypothyroid, slow metabolism and other things that I think he may be able to help with.
- I believe in Alternative medicine and think my family could also benefit from seeing him.
- He's local (for me) and I could have someone caring for me here in town. I only see LLMD every 4 mos. who is 2 hours away.
Posts: 42 | From St. Louis, MO | Registered: Aug 2010
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posted
I would consider consulting with him among an LLMD. That would be my plan. I think the proof is in the pudding but I would want to know that his treatment would not negatively impact the treatment that was being used to eradicate Lyme. I am a big Burrascano follower and feel that that is the proven way to get well. Now my doc uses alt. herbs and things to support the Burrascano protocol-- Just my thoughts.
Posts: 859 | From Southeast | Registered: Mar 2011
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I personally WOULD NOT! The fact that he doesn't believe in Chronic Lyme means that he is discounting YOUR illness! How can he treat you if he doesn't believe you're sick??
I saw one such Doctor, she was a good Naturopath but I got fed up w/ her making me feel like I was "CRAZY" for treating a disease in her mind doesn't exist!! She constantly lectured me and telling me I was not sick with Lyme and how b/c I am a stay at home mom with "no goals and aspirations" that's why I have the depression and anxiety, etc... I just got so sick of defending my disease and my actions and trying to so hard to convince her that I LOVED my life BEFORE Lyme!! So after 3 months I couldn't handle it anymore and never went back.
A good doctor is the one who is willing to think outside the box and take YOUR individual issues into consideration. Lyme disease is a hard one to treat with no one protocol that works for everyone... and a doctor who already has such a strong stand against Chronic Lyme isn't going to go to battle for you. That's just my opinion.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
No way I would not see him
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
I think it depends on the reason you wanted to see the doctor. If it is just one specific issue like how to improve your immune system or to get vitamin C IV's or something like that it might work out.
But I would definitely not make a doc who does not believe in chronic lyme my primary care doc.
Depending on what therapies you are looking for there are probably many more open minded docs near you who could be helpful.Lots of chiropractors for example have detox foot baths.
I would go to the website below and either look for docs by state or by procedure or condition (be sure it says "contains" instead of "starts with" if researching lyme). In the middle of the page click on the link for more search options.
If you leave everything blank except for using the word "starts with" as speciality and "lyme" you get 169 results -- some are not in the U.S. but others are scattered around the country. These docs are not the only possibilities but they would probably be the first choice of acam docs.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
That's a tough one. If he does not 'believe' in Chronic Lyme', that's a problem. he will just end up treating symptoms, forever, while you continue to suffer and he gets rich. They have to understand that Lyme, Myco,, Chlamydia, HHV6, yeasts are ALL CONNECTED and cycle in your body - as you kill of one group, another comes out to play. They hide from the immune system behind the metals, which we are now exposed to every day with chemtrails and food additives and chemicals. Also, EMF agitates it all, cell phones, cell towers and especially TV, digital clocks and lights dimmers all give off EMF. That's what Chronic Lyme is.
Posts: 116 | From Bisbee, AZ USA | Registered: Sep 2005
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posted
Alternative medicine is a wonderful thing, and I don't disagree with everything in the links you posted. Some thoughts:
- If he will (obviously) say that you don't have lyme, will any of the treatments he want to try affect lyme disease in a negative way? (I have no knowledge if there even are any that do..)
- How important is it to you that he goes with your diagnosis? It sounds like he spends a lot of time placing his views on people until they break. Sounds tiring to me!
Are you thinking of leaving your llmd and trying to pursue only alternative therapies?
If I could afford to see a natural doctor, I would want to do so along with my llmd. So having a doctor that wouldn't lecture me about that or the treatments I was doing would be a must for me!
Posts: 60 | From MO | Registered: Jul 2010
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
I was treated by Dr.K. years ago and got well from Lyme. I met Dr. Y. at Dr. K.'s Beyond Lyme Conference in May, discussed in the posted article, and I would see him in a heartbeat. Nobody I have ever met dealt with only a sprichochete, but rather many underlying problems that have to be addressed if one wants to get well.
Dr. K. recognized that many years ago and so does Dr. Y. They are masters at their craft.
Maybe some day we will find a better name for a chronic disease that has so many parts to it. It is definitely a whole lot more than borrelia and a few co-infections.
I would go see this doctor yesterday! if I still had a problem.
He is also a specialist treating parasites. Babesia is a parasite. Call it what you want -
We need a whole bunch more like Dr. Y. and Dr. K.
Good luck.
Posts: 9834 | From Washington State | Registered: Oct 2000
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James1979
Unregistered
posted
Gigi, Dr H calls it MCIDS, "Multiple Chronic Infectious Disease Syndrome". I wonder how well that name will catch on...
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glm1111
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posted
I would follow GiGis advice and not hesitate, especially if he is also aware of intestinal parasites.
Lyme is much more than spirochetes and that is why abx alone don't usually work unless caught VERY early on. You are lucky to have this doc in your area. Good Luck,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Lyme is much more than borrelia. It's really a bad, misleading name. I don't even think Dr. H's name adequately describes it because it's only one part of the puzzle. It's more than infections alone.
I would see him. I would not necessarily stop seeing the LLMD, but I would see what this doctor could do for you.
My LLMD saved my life, for sure, but I got the rest of the way well when I worked on the other parts of the illness he didn't address.
Every BODY is different. For me, every time I had "Lyme" I also had mold exposure. EVERY time. My body is only now releasing the mold with little help from me.
There were many layers before I got to this one. Borrelia seemed to be an outside layer, so it kept coming back whenever I stopped meds .... when I beat it down, then started addressing other things, I got well.
I would give the doc a try.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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emla999/Lyme
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Member # 12606
posted
Dr. Y is a member of ACAM and his approach to treating chronic illnesses appears to be very similar to that of Dr. K's approach. Dr. Y is probably most famous for his views on parasites.
He wrote a book entitled "Accidental Cure" and in that book he discusses how various chronic infections (such as lyme, mold, parasites, viruses) heavy metals and other toxins can cause chronic illnesses.
Also in that book he discusses chronic Lyme Disease. And from what I could gather he seems believe that chronic Lyme Disease exists. But he also appears to believe that chronic Lyme Disease is being overly blamed by some medical doctors as the primary cause of some patients symptoms.
And again, much like Dr. K, Dr. Y doesn't seem to become fixated on just Lyme Disease. He also addresses the numerous other possible chronic infections and toxins that a chronic ill person's body may be harboring.
So, in my opinion, if you think that Dr. K is a good medical doctor then you will probably also think that Dr. Y is a good medical doctor.
Posts: 1223 | From U.S.A | Registered: Jul 2007
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nefferdun
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Member # 20157
posted
I wouldn't want to see anyone that believes there is no such thing as chronic lyme. I know how they will patronize me and come up with other diagnosis to explain what I well know is lyme. It is just a waste of time and money.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I'm with Neff on this one. Doesn't seem like a good way to spend your time and money.
Certainly you may be battling other things, but isn't there a naturopath around that believes in chronic lyme?
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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Abxnomore
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Member # 18936
posted
No I would not. He will just try to convince you that you have chronic fatigue syndrome or fibromyalgia, possibly epstein barr and you won't get any treatment for what really is causing your symptoms.
It's a band-aid effect.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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seekhelp
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posted
So I presume he's no fan of the famous Dr. C in MO? Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
In this world, unfortunately, it seems you have to have the overall treatment plan yourself.
If: - this non-lyme-believer will offer therapies that you believe will benefit you, and - you can handle his attitude, and - you feel it is worth trying to maneuver through conflict (one doc might want you doing this treatment, the other one may not; or this doc may want you to try some other things that make no sense to you; and so on...),
then maybe the doc can be a part of the puzzle for you.
It comes down to what you want from him and what you think you'll get from him. Shared belief is helpful to some degree, but blindly so means lack of exposure to other potentially useful ideas. I tend not to require a certain belief from my docs, and care more on their behavior.
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
I would definitely go see this doctor. I think we are all quick to label everything wrong with us due to Lyme. I'm guilty of this myself and I worry that I could be missing something else that could help me get well.
Keep an open mind and see what he has to say.
Posts: 132 | From Somewhere | Registered: Jan 2011
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GRrrr!! BUT - he does believe many people suffer from a "lyme-like" illness and has many treatments to relieve symptoms.
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