jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Wondering, has anybody resolved their shortness of breath by treating for mycoplasma? I've been treated for Babs on/off since September last year. Have been off everything for about 10 days due to liver numbers. First went off Art, then went off Mepron, then went off Biaxin. Liver numbers were increasing and wouldn't slow up.
Some symptoms are creeping back. I'm not sure though if it's Babs or Mycoplasma. I just got tested for Myco but don't have results yet. I still need to treat Bart.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
My SOB goes down when I treat bartonella.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
up
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I have always associated shortness of breath with Babesiosis, not Mycoplasma.
Posts: 4682 | Registered: Oct 2000
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
As always, we've got it narrowed down to.....nothing. lol. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I believe all patients with shortness of breath should see an ENT to make sure there is not something abnormal about their vocal chord motion.
I thought it was babesia but we discovered that my vocal chords are not moving normally, which gives me the sensation of not breathing. This can be caused by a nerve issue which we all know Lyme can cause. (it's caused me sensory nerve damage in my legs) It's just one extra thing to rule out. It's not always Babesia.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
SOB can also be caused by Bart.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Just got back from LLMD. It's not myco. I still have lyme, babs & bart, oh my, and now strep.
Going on herbals, liver is too toxic. Need liver to hold on so I can treat strep.
I'm so close, yet so far, from being well. I think I'll just go organize all my supplements, take my first magical drop and then cry.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
Are you taking milk thistle for your liver? When I was on IV Rocephin, my liver enzymes went up. My llmd told me to take extra milk thistle, and they normalized.
Posts: 418 | From NJ | Registered: Sep 2007
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Yes, I'm on 3 a day.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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posted
In response and agreement with Backinstolaf - i was also treating babesia for months with no improvement on my suffocating shortness of breath problem. Upon being scoped from the nose down to the throat, i was also diagnosed with Vocal Cord Dysfunction.
Hope this helps someone. Its treatable, hard to cure, but its doable. Acid reducers, control the anxiety, and breathing/voice exercises. I didnt believe it, until i saw on the camera, my vocal cords were slamming shut when i inhaled, which is BAD!
-------------------- A tiny bug no bigger than a pimple on your butt can change your life. Posts: 101 | From Southern NJ | Registered: Oct 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I had air hunger from babesia. I was tested for asthma because my sister is asthmatic and it was discovered I was hyperventilating.
I also had mold exposure which caused a shortness of breath different from that suffocating feeling that the babesia caused.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Six, how can you always so clearly differentiate every symptom, illness, etc. you had? I don't understand. Air hunger is vague enough, but you can tell mold breathing problems from Babesia? Heavy metal symptoms from TBIs?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I can't speak for her but for me it comes with years of symptom treating, what works and what doesn't work, what is present and when. I had just never suspected myco so I wasn't sure if it was lurking.
I tend to obsess about every symptom. This isn't my personality, or maybe it is, but after years of suffering and being told it's in my head or giving me some worthless label (i.e. lupus or MS), I'm going to figure it out if it takes my last working brain cell.
:-)
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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