posted
I know doxy isn't enough to treat chronic Lyme, and that stronger drugs and co-infection drugs are needed. But is doxy worth a try for a while, perhaps with tini, as a combo? I'm not asking if it will cure Lyme, just asking what people's experiences are with regard to whether its worthwhile to use for a few months. Thanks.
Posts: 641 | From Nevada | Registered: May 2009
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posted
I took Doxy for months by itself. It helped but I took double the normal amount 4 pills a day - 2 in the morning and 2 at night. Beware of the sun if you do this
Posts: 131 | From ontario | Registered: Oct 2010
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
My LLMD used doxy in combination with other drugs. You might check out Dr. B's treatment guidelines to see what he says.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Doxy was the only abx I was on for 9 months. (I'd gone through the 18 months of a variety of abx previously and had reached a plateau.) The doxy was low dose. Only 100 mg 2x/day.
I took myself off it while waiting to see a new LLMD. Been without it for almost 4 months and have REALLY deteriorated.
New LLMD started me on zith this week.It will be one week on and one week off for a while.
Wondering why that's pulsed and doxy isn't.
Posts: 1302 | From USA | Registered: Dec 2002
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sutherngrl
Frequent Contributor (1K+ posts)
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posted
After trying an array of other antibiotics for 1 year, I have now been on just Doxy for the past 2 years. I have had the most improvement on just Doxy.
I am now at a plateau and maybe getting close to remission. My doc wants me to continue on Doxy for a while longer. I am dealing with some psych issues at the moment and that is my focus for the time being. But as far as lyme goes, Doxy has been the best med for me.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Marz, Suthern, which other antibiotics have you tried?
Also: Have you guys tried other tetracyclines, specifically mino? If so, how did they compare to doxy? Thanks.
Posts: 641 | From Nevada | Registered: May 2009
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posted
my llmd has me on doxy and clarithromycin and it's worked pretty well until lately. I think I need to change up as I've gotten worse lately. I was on mino for probably a year or so before the doxy (with clar) and I had to stop it due to getting lots of black spots on my skin, all over. They look like little bruises. Evidently this is a common side effect for some people. I had previously been on Rocephin, zith., flagyl, mepron(only breifly) and ceftin. I never got much better on any of those. I've tested negative for babs and bart. and all others except EBV, CMV, and coxxaci B (sp)? I'm not sure what 2 try at this point. Going to see llmd next week, hoping 4 some answers then. Best of luck 2 you.
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
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Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Dan67, during those 18 months I was on doxy, flagyl, ceftin, zith and metronidazole.
Also tried cipro as a challenge for bart more recently.
I've wondered if mino wouldn't be a good idea, since I think it's supposed to penetrate the brain well.
The reason new LLMD chose zith now was so I could be in the sun this summer. Not sure if they're really interchangeable as to what they do.
Posts: 1302 | From USA | Registered: Dec 2002
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sutherngrl
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Member # 16270
posted
I was on zith, flagly, biaxin, mino, malarone, and probably at least one other before going on doxy. I basically had no improvement until starting doxy.
However, we are all different. We have different strains and variations of infections. So what might work for one, might not work for another. Its basically trial and error.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
all these positive reports on doxy seem to agree with Dr. C's recent youtube video on Lyme -- he says doxy helps many people.
Posts: 641 | From Nevada | Registered: May 2009
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CherylSue
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Member # 13077
posted
Yes, I took doxy 200mg BID. That was my second drug, and it really cleared my brain. I did relapse on it, though, but I had taken it a long time off and on. I think my body became resistant to it. It didn't clear up everything, though. Cefuroxime Axetel (ceftin) later put me in a longer remission.
I did get a darker pigment patch on my face that I attributed to the doxycygline. You can't take it in the summer either if you plan to be in the sun. It also discolors your teeth a bit.
It's a good drug, but you really need to take 400mg a day for it to work.
Don't take it with milk products or recline for a least an hour.
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
Up... curious to see if there are any more responses to this - anyone else succesffully use doxy for chronic Lyme? Interesting discussion in this thread......
Posts: 641 | From Nevada | Registered: May 2009
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posted
for me it helped with a combo, by itself not so much.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi dan and all:
I attended Dr. Sapi's seminar at the UNH in May and she showed results of various drugs against LB in its 3 forms (spirochete, bleeb, and cyst (with bio films).
All was in vitro (test tube, not human).
Doxy lowered the spirochete load by 90% BUT increased the development of round body (doubled).
Amoxicillin reduced spirochetes by 85% & round body by 60%.
Flagyl reduced spiros by 90% and round body by 80%.
Tindamax lowered the spirochete and round body load by 90%.
You can read the results on line.
I think the gist is if you stop doxy the cysts / bio film colonies break up and the spirochetes come back.
On screen you could actually see live spirochetes within the cyst / bio film colony (they used an atomic microscope)
Doxy and Tindamax was the best combination from what I remember.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
Tim, interesting. Actually, my guess as to why doxy is so helpful to people is that it probably hits many co-infections not included in Dr. Sapi's study. Just a guess.
Posts: 641 | From Nevada | Registered: May 2009
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posted
I've read that doxy really does nothing for chronic Lyme. Google it. Very affective in early Lyme if taken right away.
Posts: 96 | From USA | Registered: Jun 2011
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posted
I've read that doxy really does nothing for chronic Lyme. Google it. Very affective in early Lyme if taken right away.
Posts: 96 | From USA | Registered: Jun 2011
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