Who of you have terrible migraines as part of your symptoms? I have had a migraine every day for over 2 years. Mine are different that a regular person's migraines because sometimes I am able to function somewhat during them. But by 3 pm, the day is over for me.
But, in the past year (prior to starting Lyme treatment) the migraines have gotten worse. I've had a migraine that will last for weeks that is incapacitating. I've had to go to the Er to break them when they have lasted 6 weeks.
I'm currently in the hospital right now about to receive a DHE infusion for 2 days to try to break this latest one. I've had this one for 3 weeks now and have been completely non-functional and unable to care for my children. Traditional migraine drugs tend to not work for me. Excedrin migraine and huge amounts of magnesium help me.
My Lyme issues seem to be mostly neuro based. I also have a Bells Palsy that has never resolved. The BP has additional issues beyond a typical BP. Both the BP and the migrains came on within 3 months of each other.
I'd love to hear about others' migraines. I'd also love to hear about your treatment and if your migraines are imrpoving. I've told my husband and LLMD that I don't care about fixing my face, but could someone please fix my head!!!!
Posts: 3 | From Seattle | Registered: Jul 2011
| IP: Logged |
posted
Going gluten and dairy free, taking B12, and magnesium (also b12 and mag in regular IV infusions) have reduced my migraines. I'm sorry you are having such a terrible time.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Mine are cleared by Imitrex. I don't know what I would do without it. I have had them since the age of 12 and they always put me to bed for 3 days. If it came back on the other side of my head, behind the other eye, another three days! It was hormone related. Taking bio-identical hormones helped prevent them.
When I got lyme I thought I was having migraines because they were so intense, but they are usually behind both eyes. Imitrex still got rid of it. It is important that I take it at the first twinge. I can't wait to see that is is really serious about coming on.
They are horrible so I hope you find something to help you.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
First question is always : mold in your home or workplace? Second : parasites treated third : other
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
posted
I've had migraines for years. I had them from age 10. I went for many years without them, then they'd come back. I went for 2 or 3 years having h/a's lasting 2 and 3 months at a time. I had seen my regular doc which gave me some pain pills. Later I went to neuro. who did eeg and put me on several meds, which none worked, although some made me very groggy and difficult for me to work. I stopped all the meds one day and about 2 weeks later the h/a stopped. Then a few years later they were back with a vengance. My doc had given me imitrex which seemed to help a little, but I still had gone to ER several times for cocktail shots of demerol/phenergrine The last time I tried imitrex in the leg my heartrate went way high and my chest cramped bad. My doc said not to use it anymore. I then had another neuro. put me on topamax and it did pretty well for a while. I did my lyme treatments and the h/a persisted (IV Rocephin, flagyl, zith, and ceftin) I then tried mepron for a couple weeks and my tummy went nuts. It seems after all that the h/a died down a few months later and I didn't have any for several years now, until today...ironic huh? I had a pretty bad one today. I have been dizzy again for the past few weeks and have had more nerve pain in my feet/legs, and arms..so I'm not that surprised the h/a has returned. I need to get my lyme treatment adjusted as I think it will help the h/a. That's about all I can personally recommend. Treat the lyme and/or babs..and maybe try some topamax in the meantime. Best of luck to you
-------------------- One day at a time Posts: 409 | From TX | Registered: Mar 2004
| IP: Logged |
posted
I have had migraines a a teenager, went away for a while, surfaced while pregnant, went away again and came back after lyme disease hit.
Imitrex makes me feel like I am having a coronary so I use maxalt. Magnesium definitely can decrease the occurance and if you can see a ND, myers cocktail may help you. It is magnesium and B vitamins IV. A few weeks of that may get you to the place where oral magnesium can take over the job.
There are migraine preventatives (seizure meds) that you can take daily to greatly reduce migraines. You might check into them. They all have side effects that may or may not affect you, but having a migraine all the time is no fun. I have been there.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic