posted
I googled the phrase - says muscle invasion by the spirochetes. The spirochetes can go anywhere!
Posts: 13116 | From San Francisco | Registered: May 2006
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Hi there-
While I was never diagnosed with lyme myositis, I did have horrible pain in the muscles in my legs....it felt like I toothache in my legs....After treating with abx, they were still in horrible pain....For me, it was difficult to tell the 'origin' of the pain...in other words is lyme in the muscle tissue causing this pain or is this some type of neuropathy leftover from the fact I had lyme encephalopathy...
Reflecting back, I think it was actually a form of neuropathy....I didn't identify it as this initially because you usually hear neuropathy attributed to pins and needles, tingling...etc...Additionally, I think it was inflammation due to some immune system dysfunction from lyme..
Treating with Vitmain D in at least 4,000 ius a day to modulate my immune system and using sublingual B12 has DRAMACTICALLY helped my leg pain....I also found some relief from taking whey protein....Please note, however, if you have muscle inflammation, there can be a little flare-up in pain when starting Vitamin D or B12....
I'm so sorry you're hurting....
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
Bugg, do you also experience weakness? I can barely function anymore... Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I am curious about this too As I treat and most all symptoms got better except pain and fatigue. I thought pain would go then fatigue last as that was onset order backwards and seemed to be how things unraveled for me. But the fatigue is improving and the pain is not and actually more Nero symptoms and more head to foot pain to the point now I am confused for ten plus years increase in fatigue etc meant increase in pain of course easy to understand. Foe first time ever fatigue down and pain through roof Mo new meda or treatments. What gives
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
Bobidor-I don't know what your history is but I would look into testing for coinfections. If you're negative for coinfections, I would consider that you might be suffering from severe vitamin B12 deficiency which can cause profound weakness (in the form of anemia) and/or neuropathy. It's my belief that some of us with lyme have disruption in our ability to absorb B12 from food, especially if you've been on long-term abx. If you have been chronically deficient in B12, you can become profoundly weak, suffer from joint pain, fatigue, brain fog.....The symptoms of chronic b12 deficiency profoundly overlap with those of lyme so it's so very important to discern if you are low in B12
You might want to google "pernicious anemia". This is a condition where people are suffering from chronic B12 deficiency. You might want to see if this rings a bell for you....
I'm not saying you're B12 deficient. I'm just saying that it's one thing that you should strongly consider if you're suffering from weakness or any signs of neuropathy...
Posts: 1155 | From Southeast | Registered: Oct 2005
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I was doing Bicillin injections, one got extremely, out of the ordinary painful - I mean going into shock/ER visit type pain.
I was in the hospital for 5 days due to the rhabdo and my high CK levels, concern about renal failure. Had to flush, flush kidneys, they rebounded. Do I think Lyme and company played a role? Of course - literature talks about Lyme myositis. TS
Posts: 566 | From West Coast | Registered: May 2008
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