I have lived with the throbbing and stiff neck and nerves cutting off and severe insomnia etc. for years
now I have double vision, dyslexia, memory loss
no one cares about me I jus got to go to work anyway...
well, I got an LLMD apt Thursday
would you do an MRI? does it help a Lyme patient in anywya? Don't want to do more stupid tests (that could shift my fillings in my teeth??) if they tell nothing that could help me anyway - done enough of those!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 600 | From USA | Registered: Jun 2011
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I'm sorry you are going through this. I will bump this up for others to see.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I had an MRI for my dizziness and it was normal. However, I do have Bartonella and I believe that is the culprit.
When I was in the MRI machine I had a panic attack (also Bartonella).
I am treating Bartonella with Rifampin currently and my head feels like it could explode with pressure from the throbbing. Bartonella can cause vascular issues and blood issues.
BTW, I was negative based on Igenex testing but I def. have it!
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
The vision issues are also a Bart symptom.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I'm sorry you are struggling. Babesia also causes the meningeal inflammation. And the insomnia.
We care. I'm glad you have an LLMD appt. Keep us posted. It does get better.
posted
Does the pain get worse if you try and put your chin to your chest? I had menigitis in 2008 and when I tried to do that the increase in pain was very obvious.
The menigitis was the piece that finally got me a lyme/babesia diagnosis after 8 years.
I had terrible headaches and stiff neck for all of those 8 years but now with 2+ years of treatment I rarely get headaches and the stiff neck is better although it still cracks.
Hope you are feeling better.
Posts: 186 | From colorado | Registered: Jul 2010
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yes, I have the panic attacks, too, gotten worse lately,
feeling like I am running too fast but I can't slow down becuase I am already standing still - my poor body - it really gets stressed out
I hope they can give me something for the Bart on Thursday
thanks for your messages
appreciate those!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 600 | From USA | Registered: Jun 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I also have the stiff neck and back of the head pain.
So far, long term doxy is the only thing that has helped it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
I have dealt with stiff necks and head pain for years on and off. I thought mine was babs.
When I just had a horrible herx, one that was worse than any I had ever had, I was taken to the ER.. cat scan and blood tests show'd nothing. Spinal tap came up viral meningitis.
Believe me, the bad stiff necks and head pain were nothing compared to what I had with the viral meningitis. You will know how severe it is and can't function at all when it goes into a meningtis. And yes, you can't put your chin to your chest, can't open your eyes to any light, vomiting is non stop... viral meningitis is wicked.
This sounds simple and hard... but stress can do a big bad number on your body. Our minds can think so negative and get us deeper in the stress mode. If you, and myself, and all of us, can try to not let stress get the best of us, we will be better for it. Hard to do.... but take it on as a job...you're seeing a dr. soon, and thinking positive that he will have answers that will help you get to a better place.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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I jus got to go to work anyway...![[Smile]](smile.gif)
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I will bump this up for others to see.
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