posted
I would like to say Hi to everyone!!! I am currently taking 4,000 mg of amoxl. a day because my lyme has come back FULL FORCE and I feel I've been hit by a truck. Anyhow does not seem to be working , I have a wonderful PCP who works with me. Has anyone found a med that works for them? I am going to get the Activated Charcoal and apple pectin too. Please help! Getting very frustrated here
Posts: 12 | From Greensburg Pa | Registered: Aug 2008
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posted
some pcp really care and want to treat lyme but I would advise you if at all possible to get a really LLMD who will know the ins and outs of Lyme and CoInfections.
Posts: 324 | From Philly | Registered: Jun 2010
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posted
I have seen a LLMD in the past, and this is how I knew I have it.
Posts: 12 | From Greensburg Pa | Registered: Aug 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Look into treating for parasites which can be a co-infection of Lyme. Do a search on here for parasites and google parasite symptoms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
Do you have con-infections? Did you take a cyst-buster for Lyme? How long did you treat?
All these can play a part in if you relapse. Knowing these could help us give you advice.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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posted
Bicillin LA injections worked for me like nothing else with the Lyme, I do them 3x a week. Make sure to check for co infections too.
Posts: 845 | From Northeast | Registered: May 2011
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I have treated for years off and on. I did not take anything for Cyst-buster I actually have no idea what that is. As I can remember I do not have any Co-infections with the lyme. However my memory is not what it used to be! I would have to dig out my paper work.
Posts: 12 | From Greensburg Pa | Registered: Aug 2008
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
It is very unusual NOT to have co-infections. The testing is notoriously inaccurate.
Could you list your symptoms? That would help.
Sorry about your relapse. It's the nature of the disease. You will get through this round, too.
posted
List of my symptoms, dizzy, forgetful,dropping things left and right, joint pain fingers elbows neck every joint! sore feet no energy what so ever, I will have to find my paper work to see what co-infections I have.
Posts: 12 | From Greensburg Pa | Registered: Aug 2008
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posted
just says Q-RIBb positive bab neg Ehrlichia neg can someone give me a test name so my PCP will rerun the tests it;s been since 04
Posts: 12 | From Greensburg Pa | Registered: Aug 2008
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posted
I just read the list of symptoms fits me to the T I remember feeling like this when I was first dx and I know it's back full force
Posts: 12 | From Greensburg Pa | Registered: Aug 2008
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