LymeNet Flash: So nervous!

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»	LymeNet Flash » Questions and Discussion » Medical Questions » So nervous!

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Topic: So nervous!

hezzer926
LymeNet Contributor
Member # 17902

posted

So I've been taking oral medications for lyme, babesia, and bartonella on and off for 3 years now.. I have finally gotten to the point where I thought IV medication may help me ..

I'm much better than where I was 3 years ago but I still have bad brain fog and mostly neurological symptoms...

I've actually been approved through my insurance company and my dr is putting me on IV levaquin .. I've taken it orally before and been fine..

Anyone have experience with IV levaquin or IV in general? Did it help get you to remission? Is this worth it??

I'm a ball of nerves right now!

Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008 | IP: Logged |

scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907

posted

I was nervous too prior to starting. I'm about week 10.5 on IV now and I'm doing fine. It was hard the first week while my body was trying to adjust to it but now it's a little easier.

The key for me is dripping it really slow. For example if they recommend dripping it in 1 hour I take 3 then work my way down. If I'm in a hurry and drip faster than I get very very nauseous and dizzy and my heart pounds out of my chest. So I just have to find that perfect drip rate and I'm fine. Why are you on Levaquin IV? I thought that is for Bart, no?

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Posts: 1391 | From Lyme Land | Registered: May 2011 | IP: Logged |

hezzer926
LymeNet Contributor
Member # 17902

posted

yes for bartonella.. my lyme dr thinks bart is my main thing i guess..

has the iv helped u compared to other stuff?

Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008 | IP: Logged |

scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907

posted

YES!! Definitely!! I'm able to do so much more now and I no longer need a nap during the day. I still have a long way to go but I have made more progress in 10 weeks on IV then I did 12 months on oral meds!

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Posts: 1391 | From Lyme Land | Registered: May 2011 | IP: Logged |

hezzer926
LymeNet Contributor
Member # 17902

posted

how was the herxing? were u on rocephin?

Posts: 245 | From East Brunswick, NJ | Registered: Oct 2008 | IP: Logged |

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