posted
I was just told by my LLMD that he wants me to start IV Rocephin. I have been on antibiotics since December, but I have had to switch a couple of time because my tummy is sensitive.
I have been on Bicillin and Rifampin since April. I was starting to see improvements, but have relapsed the past month and can hardly get out of bed most days. I have children, so I cannot keep up with their needs when I am like this. My husband is working a lot, and I do not have the daily support I so desperately need.
I amscared about doing the IV thing. Not only is it incredibly expensive and risky to my health, I have heard of it not working for many people. I trust my doctor, he is a brilliant physician, but I cannot help but second guess. So I guess I need some people's experiences with this medication, please.
Thanks in advance!
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
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posted
anyone?
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I did IV early on-no problems. It helped put the lyme on the back burner while I started treatment for bart
Posts: 1276 | From maryland | Registered: Jan 2009
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posted
Hi - I did the Rocephin thing for 6 weeks 3 years ago. It was really no big deal in regard to administration - took about a 1/2 hour or so each night. I was HAPPY to have it. I was mis-dx with MS, etc. so the abx needed to cross the blood brain barrier. I was a MESS. Have 3 kids... No I'm completely fine. You would never know what I went through. My only lingering issue? Very minor left side neuropathy which flares when I eat sugar or caffeine. Oh, and I was on abx (a variety) for 11 months total. Best wishes to you!
Posts: 43 | From Chicago | Registered: Mar 2008
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My son just finished 10 months of IV antibiotics this summer and it took him from bedbound back to school. It made a huge difference. No issues with rocephin at all. He is 16 now and will continue on with oral treatment.
My sister is on IV's righ now and has a 5 year old. She is getting better.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I wouldn't suggest to anyone which specific type of antibiotic treatment to do. The LLMD should make that decision based on each individuals symptoms, tests, etc.
The longer you have had undiagnosed lyme, the more likely IV antibiotics are going to be suggested.
Having a fatal infection is more dangerous than the complications of IV treatments.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
I absolutely loved IV Rocephin and did great on it...totally brought back my cognitive functioning where oral abx didn't (I had encephalopathy from lyme)...
Posts: 1155 | From Southeast | Registered: Oct 2005
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I used IM (intra muscular -given by shots) Cefttriaxone (generic rocephin) for 6+ months and 70% of my pain left. I did get lumps (scar tissue) from the shots but it was worth it.
It's been 2 years and the pain has not returned but then I continue on orals. I hope to go on IV early next year.
Landau says she is in remission but still has symptoms. She also used a hyperbaric oxygen chamber.
http://www.rochester.edu/pr/Review/V70N3/gazette04.html Finally Landau�s doctor, afraid that her life was in danger, took drastic measures. He gave Landau an experimental treatment: intravenous antibiotics administered through an artery leading to her heart and 30 days in a hyperbaric oxygen chamber. She was the first patient ever to receive the unapproved treatment.
�It saved my life,� Landau says of the treatment, �but it didn�t cure me.�
I really think IV may be necessary for some ppl but getting into remission may require other treatments as well (parasites, biotoxins, co-infections, heavy metals, dealing with genetic detox issues etc..)
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
I'll second that, samsy. But Lymtoo's right, I couldn't tolerate anything but the Rocephin for a long time, but now that I'm doing better, we're adding in the cyst busters, so important!
-------------------- Susan Posts: 80 | From Queen Creek, AZ | Registered: Nov 2007
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