posted
For those of you who don't know about me, I'll give you a brief history.
Lyme dx, babs dx, dx 1989. treatment ever since with various antibiotics (you all know that deal), lots of herbals, on and on (you know the story, unfortunately)
I am having the most trouble with Babs, I think. Haven't really treated for parasites, lots of treatment for yeast.
My worst ongoing symptoms are - chills, sweats, pain, fatigue, cognitive, depression, anxiety, migranes, inflamation.
I thought it may be helpful to you all if I log my experience with Medsonix.
I've been really bad lately. I guess the years are taking its toll. I'm 52, 5'6' weigh 147, smoke (hate to admit that, but yea) something I have to work on.
I'm leaving in the morning for Vegas. I live in AZ. My husband also has Lyme and hasn't been doing too well so he is also doing the treatments.
The plan is 2 treatments on Sunday, 1 hr morning, 1 hr, afternoon. 2 treatments Monday , 2 hr morning, 2 hr afternoon,. We are going to do a 3rd day and I'm not sure how long yet.I'll give you all mine and my husband's experience with the treatments on a daily basis.
So, for now, I'm pooped and have to rest. I'll post again as soon as i can.
Donna
.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Good luck Donna!! I cannot wait to hear about your experience!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
| IP: Logged |
posted
Sorry i haven't been doing a day by day, so tired.
1st day got to appt 11:00 a.m.. Al, the owner, is a really nice guy. My husband and I did a morning 2hr appointment. Al told us that we would probably feel a bit worse after that and we did. Not too bad though, me - just a bit more achy, Jim, my husband, knees hurt more.
During the appointment you sit in comfy chairs with headphones on listening to music. Without the headphones, the sound of the machine (or drum like sound wave machine) you sit in front of would be too loud. Al turns the lights down and you take a nap if you want to. I mean, what else is there to do? lol You can read if the lights are left on. We were by ourselves today.
We had a 2 hr break until our next treatment, which was at 2:00 pm. There are places to eat close by. Also, Al lets you eat and drink there if you want to.He even has a microwave.
During our next treatment at 2:00, Jim slept, I read. Jim said this treatment helped his knee pain to feel somewhat better. For me, i'm not really sure. I know I was tired, but was that from so much sitting?IDK. As far as being any less achy, again I'm not sure because my pain varies throughout the day anyway.
Jim and I stayed at the Bellagio. They offer a discounted rate, through Al, for medsonix treatments. I'll let you know what the 2 nights stay cost us when I get back home. it was nice staying there as you are right on the Vegas strip, so at least, maybe, you can enjoy yourself a bit if you have the energy. We went out the 1st night and probably stayed out too late because I didn't get enough sleep. Not good for us Lymies. But, hey, it's good to have good memories. Lost a whopping $10. Big gamblers we are. lol.
All in all, day 1 went well, but I can't say I feel any better or worse. I'm sure it's too early to tell.The treatments are very easy, but tiring since you are sitting so much in one position.
I'll write about day 2 when I can. Way too tired.
Maybe I'll blow another 10 bucks tomorrow.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Yes, this is are first time going to Medsonix.
On day 2 we went for the same treatment - 2hr. morning, 2 hr afternoon.I have to say, we were starting to feel worse. You know, more of everything. When the treatments were over, we thought with all the resting and sleep we had, we would be able to enjoy ourselves and go out for dinner and walk on the strip.
We left at 4pm and went back to the room. We never left the room. We were shot. We went to bed by 11pm since we had to be at our next treatment by 10am on Tuesday. All in all we were feeling worse. More beat up. I do wonder how much this had to do with traveling and not being in our own environment.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Day 3 - Woke up feeling like a bus ran me over. My husband, Jim, felt the same way. It was really hard getting ourselves out the door. If you are like me, I need alot of time in the morning. You know, take pills, have coffee, take more pills, eat,etc. Moving fast is a chore in the morning, but we had to be there by 10am.We also had to check out.
We both felt pretty beat up for the whole day. Me worse than Jim, but my Lyme is much worse than his.
Again we slept, read and rested for both of our 2hr treatments. It's not easy sitting in a chair for a total of 4 hrs. We knew we had a 4hr ride back so we didn't stay too much longer.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
This is the deal on the hotel. I haven't gotten the final bill emailed to me yet but the cost was - $99.00 plus around $27.00 that is added for wifi and whatever(you have no choice) plus tax. So, it does add up.
Jim and I are going to look into staying at the Motel 6. You know, it was nice staying at the Bellagio but we really weren't able to make it much of a vacation so it really wasn't worth it.
It was nice having the strip nearby, the restaurants, casinos, etc. But what i didn't like was They don't have a fridge you can use. Water bottles are $2 any where you go so we brought our own. We had to put anything we wanted to stay cool on ice which didn't last very long. They don't have a coffee maker either. A pot of coffee will cost you $15 for room service.
It was a little depressing being in the heart of Las Vegas and not having the energy to enjoy it, so it may be better for us to stay away from it and only go there if we can.For me, it wasn't worth the overall cost. I'd rather be in a place where I can bring food, drinks,etc.
The cost of having lyme adds up and after 20 years I'm pretty tapped out.
Al charged us $400 per day. This is a family rate so if you have more than 1 person it is the same rate. So in total we spent $1200 for 3 days worth of treatments. Add in another $300 (at least) for the room, food, drinks, gas, etc, we spent around $2000 for 3 days treatments. We drove so there is no plane fare included here.
I'll write more later but I've had enough for now. We're back but really tired. I hope this info is helping and if you haven't read the above posts, do so because I am writing in more than 1 post at a time.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
It will be interesting to follow your journey, and see if you feel it is worth the trip and $$$. Did you have any expectations of how you would improve, and when you would start to see the benefits?
Posts: 964 | From san diego | Registered: Oct 2009
| IP: Logged |
posted
I really didn't expect much from the 1st treatment. I guess I'll call the first time going the 1st treatment even though I actually had 6 treatments in three days.
I can say I was hoping to feel a bit better. From what I heard, you go to the first 2hr and feel bad, then the next 2hr you feel a bit better. Kind of like the second 2hr helps to scoop up the herxs from the first 2hr. I didn't get this feeling. Then, when I told Al I felt worse as the treatments went on, he said this was usual for Lymies.
There was a young woman there,25, with her mother, from Texas. This was her 4th month going. I spoke to her and her mother and they both said that she had improved a good deal since her first treatment. The young woman has had it for 4 years. She is also on various antibiotics and herbals.
What was interesting about what she also said was - she is going to an alternative doc who checks her blood under a microscope. Before her treatments, her cells almost looked like those of sickle cell anemia. After treatment the cells look much better and if she waits too long for another treatment, they go back to looking like sickle cell again.I'm sorry i don't have all the details about this. According to her, it helps her doc know how to treat her better, herbs for liver, etc. Interesting - never heard of this.
I knew it was going to be a difficult case going in. My husband is not as bad but has never really had that much treatment for Lyme, so we'll see. So far he's doing o.k.But he says he's aching today.
My optimism is coming from other medsonix users. It seems to me all have said they have improved but it takes time. It does also appear to me, you may have to keep on going to get the benefits. I'm really not sure what happens if you stop going. maybe someone else can answer that?
I am going to go again in 3-4 wks. Al said not to wait too long or it seems the spirochetes come back pretty aggressively.I feel it stirred stuff up. Maybe that's a good thing. I woke up this morning feeling pretty bad. Lack of sleep? Treatment?
I know I probably won't have the money to go for too long,although I'd like to.I do know i am really sick and scared. I've been treating Lyme for over 20 yrs and it's taking it's toll on me. If this helps me get some of my health back maybe I can get over the hump.
We've been spending so much out of pocket since medicare only covers so much,if I can get off some of the meds, it will be cost effective. If doing 2 days instead of 3 will still help that will be $800 instead of $1200 and less hotel stay.
We will be going for 3 days again soon. Also, I'm not sure what he'll charge for 1 person, but I'll ask.
I do believe there really is something to this. If you search it on the internet there isn't a bad comment about the place or the treatment.
Remember, I'm 52 yrs old, dx 1989 been on meds ever since so I'm not going to be an easy case.
Been sleeping all day. Hoping to feel better tomorrow.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
This is day 2 of being home from Medsonix. Jim and I are still feeling really bad. It feels like a flare up of all symptoms. Grrrr
Nighthunter - 4 total hrs per day may have been too much for us, like you said. I would tend to agree but I am hoping this herxing will at least give us some relief when it calms down.So, are you saying you have better results with less time per treatment? Thanks about the yeast info. Why do you feel that's the case?
I did have alot of head congestion, sinus, last night. Woke up this morning just as bad as yesterday. We'll see how it goes. If we herx for too long it may be better for us to cut down the amount of time we do it next month.
If we can bare the herx, getting my money's worth while I'm there may be a better option for my husband and I.
Like I said before, we are in bad shape so I'm trying to have reasonable expectations. When you're more ill with Lyme, it only makes sense that the treatments will cause more reactions.
So, I'll detox slowly, rest, go swimming, eat well,you know, all the stuff needed to heal the body.
I'll let you all know, in a few days, how i feel.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
I'm still taking my usual antibiotics - Zithro, Malarone, Samento and other detox and healing herbs
Any Medsonix users out there?
This is getting scary,At this point I'm not sure if the disease is fighting me back too hard and the meds aren't working or I'm herxing. It almost feels like the meds aren't working enough. Anyone have any thoughts on this?
I just tried to take a nap and I felt like I was going crazy. I feel like I'm falling apart.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
You might give it a few more days and see if it levels off. Our daughter was out of commission for several days after the first time we went to Medsonix.
It was hard for me to tell whether or not it had helped her. She had some better days after a week or so. Evaluating your own progress can be difficult too.
Potentially, if your immune system is beginning to work and rout out bugs, it can make you feel pretty bad, like when you come down with a cold and your body has all the reactions to the virus.
I believe there is recent research that Lyme hides in the immune system, like the lymph nodes, and keeps it from working right.
Of course, it is also possible that something else is going on. I guess we always have to remember that other physical problems can erupt, in a secondary way, and then they have to be addressed.
On this last trip, my daughter had not felt too well the week or so before coming. After the first day of treatment she felt much better, and has come home with a lot of energy.
This was not the case following our first visit. She had some bright spots that month, but it was up and down. The month after our second visit she had significant improvement.
After the third trip she was pretty much living on her own, and comfortable driving again. She traveled by herself to a friend's wedding, which would have been impossible this spring.
Slow, steady progress. Certainly not "cured" but so much better. Says she has had several 80 and 90% days in terms of feeling well. In comparison, this spring her best day was probably 50% or less.
I am sorry you are feeling so bad. Seems like everyone has had enough bad already. Please keep us posted. Posts: 43 | From The South | Registered: Jan 2010
| IP: Logged |
posted
Nighthunter and Dianna - thank you for getting back to me. It helped to calm me down.
The reason I went to Medsonix was obviously to get well but it was also because I was starting to really fear for my life.
I've been treated for so long and was doing a bit better until about 2 years ago when all seemed to go downhill. I know in my heart and everywhere else, that i was rebitten around that time. I was living in NY at the time and feel i got a much worse strain of Babesia. Ever since then, I'm having a tough time regaining any of the health I've had before that.
As you all know, continual herxing and flares is so hard on the body and the mind. I feel like I used to be a much stronger fighter and i need to get that spirit back again. Not that I've lost it but have gotten more fearful. fearful of the herxes, the unknown, the deteriorating health.
I guess I was surprised at just how lousy I felt when I came back. Thanks guys for giving me the encouragement i needed. I CAN do this and I WILL do this.
The science behind low frequency sound waves is promising. I do believe in it and that's half the battle.
You let me know that it's o.k. to feel crummy. LOL Next month I'll go again, for sure. i haven't heard a negative outcome yet.
I felt a bit better tonight, but I do realize that i can't miss a dose of medicine because it really does seem to make me go downhill when I do. You see, my body and mind can't seem to take the hits like it used to and anything I take just sends me right into a herx. My body can't flush the herxs out quick enough so i just get sicker and sicker. So I have to take it slower that i used to.
One of the reasons I moved out to AZ is because I just can't resist the woods, streams and nature in NY. So I'd rather not see it than see it everyday and not be able to enjoy it.Maybe the other reason I moved here wasn't as obvious - quicker to medsonix.
Well, It's time to take suppliments, herbs, vitamins, medications and anything else I can think of. Geez, that's a career in itself!
Oh, and for those of you on the East Coast, Al said 2 docs are opening up a Medsonix in Westchester County soon. He said a chiropractor and a Physical therapist.
Keep Hoping, keep trying and never stop.
Donna
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Ok so this is day 3 after my last treatment from medsonix. I left Vegas Tues evening.
So far today is absolutely the worst I have felt so far. I guess when i think about it, after starting a new medicine I almost always feel really bad around day 3. It's almost like the bacteria,virus, etc,freeze(for the lack of a better word), then the big die off comes.
At least I feel like I have a better understanding of what may be happening.
So, if the question is - Did the treatment help? I'd say - YES! Kill those mother pluckers!Grrr I'll enjoy this herx, knowing, yes, yay, something is working!!!!
Off to the couch, balance is off, hurting, taking lots of "Absorb More Toxins" with Glucomannan, Bentonite Clay, and activated charcoal.
For others who are thinking about trying medsonix, don't be scared, go for it. At least I know with the herx i also get all of the other benefits of the medsonix treatment.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Nighthunter made a good point about the yeast. Our Lyme doctor told us that Candida feeds on lyme carcasses, so it makes sense that a rapid die off would cause yeast issues.
Seems like living a very clean life, - Lyme inflammation diet, purified water, etc, and taking all your current meds, is necessary. Medsonix has been a great addition, but my daughter is still following her doctor's protocol, and hoping to end some of that soon.
Thanks for keeping a log. It helps all of us!
Posts: 43 | From The South | Registered: Jan 2010
| IP: Logged |
posted
Yea, thanks, about the yeast. I do know this is an issue for me.
For me, I have to go very slow on everything. My body has been at this a long time. I went for years when all they did was give you numerous antibiotics.
I really have to take the plunge once again. I used to on a really clean diet. You know, full yeast diet, I really need to go back to that. I just feel so discouraged sometimes because i have been at it for so long.
Treating Lyme and co's have gotten to be so complicated. When your whole life is focused on living and breathing lyme, the stress gets to you. Or at least, I can say it has gotten to me. Time to go back to the basics.
Thanks for reminding me. I needed that.
I am feeling better tonight. I finally feel like i am recovering, slowly, from the treatments.
Hearing from you and Nighthunter has really helped me to get through this.
Another aspect i have to deal with, and will shortly is PTSD. Years of lyme has really taken it's toll on me mentally. I know this in itself is something i need to address. I don't feel as strong as i used to. I am in the proces of looking for a therapist that also does EMDR. I have done this in the past and it really helped.
I think I'll start a new post on this topic.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Glad you are feeling a bit better. I thought a litle more about my daughter's reaction to the first visit, and remembered that we visited her doctor about a week later.
At the time, she was feeling worse than she had the weeks prior, and we did not know whether to attribute it to exhaustion from traveling to Las Vegas, and the plane trip, or to the treatment. In any case, at that time I felt badly about it.
If the treatment had not helped me with back issues, I am unsure that I would have encouraged her to go again. Now I am glad she has had the opportunity.
Struggling with all the aspects of treating Lyme, especially over so many years is pretty overwhelming. Especially when you are mostly exhausted. You are right about PTSD. I think you have amazing tenacity!
Thanks for your posts!
Posts: 43 | From The South | Registered: Jan 2010
| IP: Logged |
posted
Thanks, Diana, for the encouragement. I feel better knowing about your daughter not feeling well after treatment. You know what i mean. lol
Knowing that the first reaction can really throw a punch, gives me more hope. I read about the treatment before i went but no one who went stressed about feeling so awful after the first treatment.It does make sense, though. My body and hubby's are going through so much, it would make sense to feel this way.
I'm glad it's helping your back. You are a good indicator that it really does help.
Yes, struggling with lyme over the years has been overwhelming. I know it's not easy for you either, having a daughter struggling so much. I know, my daughter struggles with lyme also. She's still in NY and I'm excited that there will be a medsonix there soon.
It's amazing how we all can have such great tenacity! Our bodies and mind can sure be alot stronger than we think they are. Thank you for reminding me of that. It means alot.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Well, today it's been 5 days since my last treatment at medsonix. I can finally say I felt a bit better today!! I actually went to a flea market today. I lasted a few hours without feeling that bad. It really felt good to be back.
Can I say I am feeling any better before i did the treatment? No, but, I AM going to go again. I know it did something and that's all that matters for now.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Thanks Nighthunter - Reading your post brought happy tears. Sometimes I feel so knocked down by this. Your inspiration and support really mean alot to me. My husband and I really don't have any family support, so coming here is a life savor for me.
I also took your advice and started to treat the yeast more. I used to treat it more aggressively but haven't for some time now. For some reason I stopped because i was getting such a severe die off reaction to the diflucan. All the herxs were making me sicker and sicker, but I know i have to do it. I'll just have to take it slow. Took 1/2 pill last night and it's really kicking my butt today. It even seems to act up the babs for kill it - not sure.
I know from reading here I also have to treat the parasites but that's more herxs. I worry because I am losing too much weight.
I've been sick for so long I have a tough battle on my hands.I CAN do this and I WILL do this.
I happen to have a large wood sculpture dragon in my livingroom protecting the front door!lol
BTW - hunting at night? What do you hunt?
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Quite a battle. One of the hardest things about Lyme is how isolating it is. Family and friends don't get it, no matter how often you try to explain.
I will keep this short regarding live blood microscopy, as many doctors question its validity.
Our doctor here is an alternative doctor who uses numerous healing modalities; not an LLMD or familiar with Medsonix. The doctor looked at my daughter's blood in July, about a week after we had been to Medsonix - just a cooincidence.
Very pleased with its improvement since first seeing it, roughly 2 months earlier. Said would not have suspected Lyme from looking at it. The cells looked healthy and round; happy B cells, etc.
Doctor rechecked a month later, and was concerned to see an unknown fungus and many little cysts. We could see them too on the screen.
We were going to Medsonix the following week, and thought we would have the doctor look at the blood after treatment again. Not a controlled trial, but after Medsonix the blood looked much better again, fungus gone, very rare occurence of cysts.
The doctor commented that if my daughter could keep her blood looking like that, and feeling as well as she did that day, that in 6 months she would be fully recovered.
I think one of the Medsonix patents is for blood disorders. While I do not know if it is stand alone therapy, it certainly seems to be helping.
Posts: 43 | From The South | Registered: Jan 2010
| IP: Logged |
posted
I find that really fascinating about the live blood microscopy. Alternative docs sure have some amazing ways to know the body much better than conventional docs.
I do believe medsonix will prove to have major break throughs in medicine that will benefit so many ailments. That's really exciting.
I do wish it was more affordable, though. But, like anything else, alternative methods don't come cheap.
What other treatments does your daughter do to get over this Lyme. Does her doc have her on herbals, etc? If you don't mind me asking.
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
posted
Raccoon hunting with hounds! I bet it's a stress reliever. I really miss my "sanctuary" back in NY. I took my dog, english bulldog. to the creek all the time. Going through the woods, enjoying nature was so theraputic for me. The creek was the cherry on the cake!
Unfortunately, I'm sure I kept on getting re-bitten.Here in AZ I haven't found my "sanctuary" yet.AZ is lacking in the kind of nature I am used to. I left NY to get away from the ticks. If I stayed, I wouldn't have been able to risk getting bitten anymore anyway.
Sad how enjoying the woods, fields, grass has become so dangerous.
You statement - "My God and i found peace there even with my sickness" was so true for me.
Over here in AZ I am about 10 - 15 min. away from Wild World Zoo. It's a relatively small zoo. I got a season pass and hope to make this my sanctuary.It's away from the city and has dirt paths. Something about animals and nature sure wipes away the pain. Gotta wait for the temps to cool off a bit.From my house I do hear alot of coyotes at night. What a beautiful sound!
Posts: 140 | From Phoenix AZ | Registered: Jan 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Razz]](tongue.gif)
Printer-friendly view of this topic